<?xml version="1.0" encoding="UTF-8"?><rss version="2.0"
	xmlns:content="http://purl.org/rss/1.0/modules/content/"
	xmlns:dc="http://purl.org/dc/elements/1.1/"
	xmlns:atom="http://www.w3.org/2005/Atom"
	xmlns:sy="http://purl.org/rss/1.0/modules/syndication/"
		>
<channel>
	<title>Comments on: AS and Loneliness</title>
	<atom:link href="http://www.journeyswithautism.com/2009/03/07/as-and-loneliness/feed/" rel="self" type="application/rss+xml" />
	<link>http://www.journeyswithautism.com/2009/03/07/as-and-loneliness/</link>
	<description>Ethics, Disability Rights, and Reports from Life on the Spectrum</description>
	<lastBuildDate>Tue, 07 Feb 2012 01:06:57 +0000</lastBuildDate>
	<sy:updatePeriod>hourly</sy:updatePeriod>
	<sy:updateFrequency>1</sy:updateFrequency>
	<generator>http://wordpress.org/?v=3.3.1</generator>
	<item>
		<title>By: Belfast</title>
		<link>http://www.journeyswithautism.com/2009/03/07/as-and-loneliness/comment-page-1/#comment-63386</link>
		<dc:creator>Belfast</dc:creator>
		<pubDate>Fri, 17 Jul 2009 20:14:14 +0000</pubDate>
		<guid isPermaLink="false">http://www.aspergerjourneys.com/?p=1340#comment-63386</guid>
		<description>Very much understand the modes one switches into: of being able to pay attention to &quot;other people&quot; vs. &quot;just oneself&quot; mentality-based on routine, knowing what to expect (in terms of what/who one will have to deal with-or not). 

I had that dynamic when I had a constant partner, and to a lesser degree I retain that sort of operational method even now (without a &quot;significant other&quot;). It takes me a while to &quot;settle in&quot; to whichever attentional mode, whether outward or inward-and it can take hours before one&#039;s &quot;in the groove (or &quot;flow&quot;)&quot; of each mindset. Transitions remain quite difficult, no matter how many times one encounters them.

Also realize that once one&#039;s comfortable with a particular person, then the divide can become between being &quot;by oneself or with just this exact person&quot; vs. &quot;being around anyone else&quot;, because one&#039;s not used to or familiar with all those other people.

It&#039;s a bit like hibernation (in animals) or &quot;sleep&quot; (energy conservation) mode on computer, in that there are different demands made upon the person or machine, and one habituates to that phase-until circumstances require one to return to previous functionality. 

A superficial example, but easier to provide illustration/explanation of than intangible, mental characteristics/manifestations:
For instance, if I know I&#039;ll be alone (not going out)-then I can wear the most comfortable clothing, and how it looks is irrelevant. If I&#039;m anticipating being seen and/or having company, then I have to figure out a pretty outfit (not so pleasant to wear) in which I feel okay-looking.

It&#039;s about pacing, too-figuring out how to structure one&#039;s day &amp; week, based on when which presences (and/or absences) will be part of one&#039;s environment. Such as when to do which chores/housework, when one needs to be available to spend time with one&#039;s companion, planning for mutual activities-as well as setting aside time for solitary pursuits/projects.

And yes, I often get stuck in panic-filled mentality of &quot;there&#039;s no light at the end of this tunnel&quot;, feeling either hopelessly trapped around strangers (people with whom I&#039;m uncomfortable), or hopelessly trapped in lonesome solitude-with no sign of relief/respite. When I&#039;m alone, I&#039;m &quot;ALL&quot; alone (for good &amp; for ill).</description>
		<content:encoded><![CDATA[<p>Very much understand the modes one switches into: of being able to pay attention to &#8220;other people&#8221; vs. &#8220;just oneself&#8221; mentality-based on routine, knowing what to expect (in terms of what/who one will have to deal with-or not). </p>
<p>I had that dynamic when I had a constant partner, and to a lesser degree I retain that sort of operational method even now (without a &#8220;significant other&#8221;). It takes me a while to &#8220;settle in&#8221; to whichever attentional mode, whether outward or inward-and it can take hours before one&#8217;s &#8220;in the groove (or &#8220;flow&#8221;)&#8221; of each mindset. Transitions remain quite difficult, no matter how many times one encounters them.</p>
<p>Also realize that once one&#8217;s comfortable with a particular person, then the divide can become between being &#8220;by oneself or with just this exact person&#8221; vs. &#8220;being around anyone else&#8221;, because one&#8217;s not used to or familiar with all those other people.</p>
<p>It&#8217;s a bit like hibernation (in animals) or &#8220;sleep&#8221; (energy conservation) mode on computer, in that there are different demands made upon the person or machine, and one habituates to that phase-until circumstances require one to return to previous functionality. </p>
<p>A superficial example, but easier to provide illustration/explanation of than intangible, mental characteristics/manifestations:<br />
For instance, if I know I&#8217;ll be alone (not going out)-then I can wear the most comfortable clothing, and how it looks is irrelevant. If I&#8217;m anticipating being seen and/or having company, then I have to figure out a pretty outfit (not so pleasant to wear) in which I feel okay-looking.</p>
<p>It&#8217;s about pacing, too-figuring out how to structure one&#8217;s day &amp; week, based on when which presences (and/or absences) will be part of one&#8217;s environment. Such as when to do which chores/housework, when one needs to be available to spend time with one&#8217;s companion, planning for mutual activities-as well as setting aside time for solitary pursuits/projects.</p>
<p>And yes, I often get stuck in panic-filled mentality of &#8220;there&#8217;s no light at the end of this tunnel&#8221;, feeling either hopelessly trapped around strangers (people with whom I&#8217;m uncomfortable), or hopelessly trapped in lonesome solitude-with no sign of relief/respite. When I&#8217;m alone, I&#8217;m &#8220;ALL&#8221; alone (for good &amp; for ill).</p>
]]></content:encoded>
	</item>
	<item>
		<title>By: Rachel</title>
		<link>http://www.journeyswithautism.com/2009/03/07/as-and-loneliness/comment-page-1/#comment-56547</link>
		<dc:creator>Rachel</dc:creator>
		<pubDate>Sun, 07 Jun 2009 12:53:52 +0000</pubDate>
		<guid isPermaLink="false">http://www.aspergerjourneys.com/?p=1340#comment-56547</guid>
		<description>Hi spunkykitty, and welcome!</description>
		<content:encoded><![CDATA[<p>Hi spunkykitty, and welcome!</p>
]]></content:encoded>
	</item>
	<item>
		<title>By: spunkykitty</title>
		<link>http://www.journeyswithautism.com/2009/03/07/as-and-loneliness/comment-page-1/#comment-56395</link>
		<dc:creator>spunkykitty</dc:creator>
		<pubDate>Sun, 07 Jun 2009 07:34:41 +0000</pubDate>
		<guid isPermaLink="false">http://www.aspergerjourneys.com/?p=1340#comment-56395</guid>
		<description>thx for sharing so honestly... i m an artist, musician and writer... i live alone... and i love it... but i feel the same aspie loneliness that we all share, no matter what our different inclinations are... i cannot live with anyone else, but i long for someone to be nearby for the times when i wish to share... ironic dichotomy and almost impossible to achieve... but my heart warms for those of u who hv found some measure of fulfillment in ur relationships... i think the sense of being different will always be there, but every little ray of sunshine makes a huge difference ! cheers !</description>
		<content:encoded><![CDATA[<p>thx for sharing so honestly&#8230; i m an artist, musician and writer&#8230; i live alone&#8230; and i love it&#8230; but i feel the same aspie loneliness that we all share, no matter what our different inclinations are&#8230; i cannot live with anyone else, but i long for someone to be nearby for the times when i wish to share&#8230; ironic dichotomy and almost impossible to achieve&#8230; but my heart warms for those of u who hv found some measure of fulfillment in ur relationships&#8230; i think the sense of being different will always be there, but every little ray of sunshine makes a huge difference ! cheers !</p>
]]></content:encoded>
	</item>
	<item>
		<title>By: Rachel</title>
		<link>http://www.journeyswithautism.com/2009/03/07/as-and-loneliness/comment-page-1/#comment-702</link>
		<dc:creator>Rachel</dc:creator>
		<pubDate>Wed, 11 Mar 2009 19:42:49 +0000</pubDate>
		<guid isPermaLink="false">http://www.aspergerjourneys.com/?p=1340#comment-702</guid>
		<description>Wow, Mrs. Spock, you&#039;ve described my history and my experience so accurately in describing yours. Just amazing. Thank you!</description>
		<content:encoded><![CDATA[<p>Wow, Mrs. Spock, you&#8217;ve described my history and my experience so accurately in describing yours. Just amazing. Thank you!</p>
]]></content:encoded>
	</item>
	<item>
		<title>By: Mrs Spock</title>
		<link>http://www.journeyswithautism.com/2009/03/07/as-and-loneliness/comment-page-1/#comment-701</link>
		<dc:creator>Mrs Spock</dc:creator>
		<pubDate>Wed, 11 Mar 2009 19:37:25 +0000</pubDate>
		<guid isPermaLink="false">http://www.aspergerjourneys.com/?p=1340#comment-701</guid>
		<description>Know exactly what you mean. I lived alone for a while, as my alone time is very important to me and I thought therefore that living on my own would be bliss - and actually, I really really hated it. I felt lost most of the time, and actually started having panic attacks. It was great to have everything exactly where and how I wanted it, but I just felt so incredibly vulnerable - and very very lonely. 

Now, my partner and I spend a lot of time doing our own thing, but it&#039;s just nice to know that the other one is THERE if we need them. I struggle when my partner isn&#039;t about too, but I try not to worry too much about being needy - after all, if humans were designed to be solitary creatures, we would never pair up at all. It is right and natural to need others around you sometimes, so don&#039;t beat yourself up about it :-)</description>
		<content:encoded><![CDATA[<p>Know exactly what you mean. I lived alone for a while, as my alone time is very important to me and I thought therefore that living on my own would be bliss &#8211; and actually, I really really hated it. I felt lost most of the time, and actually started having panic attacks. It was great to have everything exactly where and how I wanted it, but I just felt so incredibly vulnerable &#8211; and very very lonely. </p>
<p>Now, my partner and I spend a lot of time doing our own thing, but it&#8217;s just nice to know that the other one is THERE if we need them. I struggle when my partner isn&#8217;t about too, but I try not to worry too much about being needy &#8211; after all, if humans were designed to be solitary creatures, we would never pair up at all. It is right and natural to need others around you sometimes, so don&#8217;t beat yourself up about it <img src='http://www.journeyswithautism.com/wp-includes/images/smilies/icon_smile.gif' alt=':-)' class='wp-smiley' /> </p>
]]></content:encoded>
	</item>
	<item>
		<title>By: Erin</title>
		<link>http://www.journeyswithautism.com/2009/03/07/as-and-loneliness/comment-page-1/#comment-640</link>
		<dc:creator>Erin</dc:creator>
		<pubDate>Tue, 10 Mar 2009 02:56:58 +0000</pubDate>
		<guid isPermaLink="false">http://www.aspergerjourneys.com/?p=1340#comment-640</guid>
		<description>Hi Rachel,
Now *that* is fascinating.  I will need to chew on that for awhile.  I like it.
erin</description>
		<content:encoded><![CDATA[<p>Hi Rachel,<br />
Now *that* is fascinating.  I will need to chew on that for awhile.  I like it.<br />
erin</p>
]]></content:encoded>
	</item>
	<item>
		<title>By: Rachel</title>
		<link>http://www.journeyswithautism.com/2009/03/07/as-and-loneliness/comment-page-1/#comment-637</link>
		<dc:creator>Rachel</dc:creator>
		<pubDate>Tue, 10 Mar 2009 01:48:29 +0000</pubDate>
		<guid isPermaLink="false">http://www.aspergerjourneys.com/?p=1340#comment-637</guid>
		<description>Hi Erin,

Being an Aspie is such an exercise in paradoxes. The desire for connection is often there (thus, the loneliness), but we can shy away from connection--partly because of the sensory overload, partly because we connect differently than your average person, and partly because we often feel so &quot;other&quot; in the world. 

In this context, it&#039;s interesting what you say about a mitzvah being about making connections. A long while ago, a friend of mine told me that the word mitzvah comes from the same root as &quot;tzava,&quot; the word for an interconnected web in which the well-being of the whole is dependent upon the well-being of each part. So a mitzvah, in its deepest sense, is an act that connects us to the web of all life and to all creation. 

Amazing stuff. The ancients had a lot to say about how to connect with other beings in a world that can be very difficult.</description>
		<content:encoded><![CDATA[<p>Hi Erin,</p>
<p>Being an Aspie is such an exercise in paradoxes. The desire for connection is often there (thus, the loneliness), but we can shy away from connection&#8211;partly because of the sensory overload, partly because we connect differently than your average person, and partly because we often feel so &#8220;other&#8221; in the world. </p>
<p>In this context, it&#8217;s interesting what you say about a mitzvah being about making connections. A long while ago, a friend of mine told me that the word mitzvah comes from the same root as &#8220;tzava,&#8221; the word for an interconnected web in which the well-being of the whole is dependent upon the well-being of each part. So a mitzvah, in its deepest sense, is an act that connects us to the web of all life and to all creation. </p>
<p>Amazing stuff. The ancients had a lot to say about how to connect with other beings in a world that can be very difficult.</p>
]]></content:encoded>
	</item>
	<item>
		<title>By: Erin</title>
		<link>http://www.journeyswithautism.com/2009/03/07/as-and-loneliness/comment-page-1/#comment-635</link>
		<dc:creator>Erin</dc:creator>
		<pubDate>Tue, 10 Mar 2009 01:24:22 +0000</pubDate>
		<guid isPermaLink="false">http://www.aspergerjourneys.com/?p=1340#comment-635</guid>
		<description>&quot;The problem seems to be that I don’t carry anyone around with me in my mind...In my mind’s eye, I don’t see myself “spontaneously sharing” anything with anyone. I feel very cut off from the world.&quot;

Rachel, you have just described my daughter.  Only she can&#039;t put this into words.  I will think of what you&#039;ve written any time she gets anxious and try to put myself in her shoes instead of being frustrated by her.   

And I love your mitzvah idea.  I&#039;ve always thought of mitzvah as rungs of a ladder reaching to heaven - every time a good deed is done, the ladder to heaven gets higher (or the closer heaven gets to earth?  I can&#039;t remember).  It&#039;s nice to have a different view and to think of them as more than the means to an end...they are about making connections - something you do for someone else and for yourself - edifying for both parties.  It&#039;s fun to read your blog...it always gives me something to think about.</description>
		<content:encoded><![CDATA[<p>&#8220;The problem seems to be that I don’t carry anyone around with me in my mind&#8230;In my mind’s eye, I don’t see myself “spontaneously sharing” anything with anyone. I feel very cut off from the world.&#8221;</p>
<p>Rachel, you have just described my daughter.  Only she can&#8217;t put this into words.  I will think of what you&#8217;ve written any time she gets anxious and try to put myself in her shoes instead of being frustrated by her.   </p>
<p>And I love your mitzvah idea.  I&#8217;ve always thought of mitzvah as rungs of a ladder reaching to heaven &#8211; every time a good deed is done, the ladder to heaven gets higher (or the closer heaven gets to earth?  I can&#8217;t remember).  It&#8217;s nice to have a different view and to think of them as more than the means to an end&#8230;they are about making connections &#8211; something you do for someone else and for yourself &#8211; edifying for both parties.  It&#8217;s fun to read your blog&#8230;it always gives me something to think about.</p>
]]></content:encoded>
	</item>
	<item>
		<title>By: Ben</title>
		<link>http://www.journeyswithautism.com/2009/03/07/as-and-loneliness/comment-page-1/#comment-612</link>
		<dc:creator>Ben</dc:creator>
		<pubDate>Mon, 09 Mar 2009 03:06:49 +0000</pubDate>
		<guid isPermaLink="false">http://www.aspergerjourneys.com/?p=1340#comment-612</guid>
		<description>in my adult life, my partner is the only person i&#039;ve ever lived with that was relatively easy&#039; for me. after three years, we&#039;ve never spent a night apart. 
i had various roommates in my 20&#039;s, but it was disastrous. for the most part, i&#039;ve lived alone and very happy about it.
we moved around a lot when i was little, so i think i got used to change. 
it wasn&#039;t until my 30&#039;s that i found myself distressed sometimes when away from home, but i think it&#039;s just homesickness for my tea cup, my own bed and my books ;)

Ben</description>
		<content:encoded><![CDATA[<p>in my adult life, my partner is the only person i&#8217;ve ever lived with that was relatively easy&#8217; for me. after three years, we&#8217;ve never spent a night apart.<br />
i had various roommates in my 20&#8242;s, but it was disastrous. for the most part, i&#8217;ve lived alone and very happy about it.<br />
we moved around a lot when i was little, so i think i got used to change.<br />
it wasn&#8217;t until my 30&#8242;s that i found myself distressed sometimes when away from home, but i think it&#8217;s just homesickness for my tea cup, my own bed and my books <img src='http://www.journeyswithautism.com/wp-includes/images/smilies/icon_wink.gif' alt=';)' class='wp-smiley' /> </p>
<p>Ben</p>
]]></content:encoded>
	</item>
	<item>
		<title>By: Rachel</title>
		<link>http://www.journeyswithautism.com/2009/03/07/as-and-loneliness/comment-page-1/#comment-610</link>
		<dc:creator>Rachel</dc:creator>
		<pubDate>Sun, 08 Mar 2009 22:28:49 +0000</pubDate>
		<guid isPermaLink="false">http://www.aspergerjourneys.com/?p=1340#comment-610</guid>
		<description>Thank you all so much for responding. It&#039;s so interesting how different we all are on this question. Your comments have gotten me thinking that I need to approach this whole issue differently. Instead of feeling isolated because I don&#039;t do the spontaneous sharing thing well (even in my thoughts), I need to find another way to look forward to connecting with the outside world. 

Today, I&#039;ve been thinking about the concept of mitzvah, a Hebrew word for &quot;good deed&quot; or &quot;sacred deed,&quot; something that you do on behalf of someone else. If I can make more mitzvah opportunities in my life, they would be something to look forward to that would be very fulfilling. I don&#039;t do the spontaneous sharing well because I&#039;m never sure whether someone will be interested in what I&#039;m interested in, and because the all-time *worst* thing for me, in the social world, is a blank stare. But I really enjoy doing things for other people, so long as I don&#039;t wear myself thin. 

Anyway, much to think about. Thanks again!</description>
		<content:encoded><![CDATA[<p>Thank you all so much for responding. It&#8217;s so interesting how different we all are on this question. Your comments have gotten me thinking that I need to approach this whole issue differently. Instead of feeling isolated because I don&#8217;t do the spontaneous sharing thing well (even in my thoughts), I need to find another way to look forward to connecting with the outside world. </p>
<p>Today, I&#8217;ve been thinking about the concept of mitzvah, a Hebrew word for &#8220;good deed&#8221; or &#8220;sacred deed,&#8221; something that you do on behalf of someone else. If I can make more mitzvah opportunities in my life, they would be something to look forward to that would be very fulfilling. I don&#8217;t do the spontaneous sharing well because I&#8217;m never sure whether someone will be interested in what I&#8217;m interested in, and because the all-time *worst* thing for me, in the social world, is a blank stare. But I really enjoy doing things for other people, so long as I don&#8217;t wear myself thin. </p>
<p>Anyway, much to think about. Thanks again!</p>
]]></content:encoded>
	</item>
</channel>
</rss>

