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	<title>Comments on: Seeing My Life from a Sensory Perspective</title>
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	<link>http://www.journeyswithautism.com/2009/04/26/seeing-my-life-from-a-sensory-perspective/</link>
	<description>Ethics, Disability Rights, and Reports from Life on the Spectrum</description>
	<lastBuildDate>Fri, 03 Feb 2012 16:32:50 +0000</lastBuildDate>
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		<title>By: Rachel</title>
		<link>http://www.journeyswithautism.com/2009/04/26/seeing-my-life-from-a-sensory-perspective/comment-page-1/#comment-213091</link>
		<dc:creator>Rachel</dc:creator>
		<pubDate>Fri, 03 Feb 2012 16:32:50 +0000</pubDate>
		<guid isPermaLink="false">http://www.aspergerjourneys.com/?p=1957#comment-213091</guid>
		<description>Hi Sharon,

So wonderful to hear from you. And welcome!</description>
		<content:encoded><![CDATA[<p>Hi Sharon,</p>
<p>So wonderful to hear from you. And welcome!</p>
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		<title>By: Sharon</title>
		<link>http://www.journeyswithautism.com/2009/04/26/seeing-my-life-from-a-sensory-perspective/comment-page-1/#comment-213028</link>
		<dc:creator>Sharon</dc:creator>
		<pubDate>Fri, 03 Feb 2012 05:33:10 +0000</pubDate>
		<guid isPermaLink="false">http://www.aspergerjourneys.com/?p=1957#comment-213028</guid>
		<description>I am new to this blog, but I just had to say that this comment so resonated with me. I am in the USA and have spent a lifetime trying numerous self help books, therapies, psychiatric treatments, and religious affiliations, all in a quest to &quot;fix&quot; me. Alas it was all to no avail. Thank you Millie for sharing here (and Rachael for maintaining this blog). I was diagnosed as an Aspie when I was a toddler, but was not made aware of it till I was in my 40&#039;s, and didn&#039;t have access to usable information on high functioning autism until recently.  So much makes sense now. The sensory overload, the meltdowns (always in private) and the inability to navigate social situations. 
I have accepted the challenges of advocating for myself as a post menopausal woman on the autistic spectrum. Now that I am accommodating my neurological uniqueness I am finding greater peace than I ever thought possible.
I wish that same peace for you. :)</description>
		<content:encoded><![CDATA[<p>I am new to this blog, but I just had to say that this comment so resonated with me. I am in the USA and have spent a lifetime trying numerous self help books, therapies, psychiatric treatments, and religious affiliations, all in a quest to &#8220;fix&#8221; me. Alas it was all to no avail. Thank you Millie for sharing here (and Rachael for maintaining this blog). I was diagnosed as an Aspie when I was a toddler, but was not made aware of it till I was in my 40&#8242;s, and didn&#8217;t have access to usable information on high functioning autism until recently.  So much makes sense now. The sensory overload, the meltdowns (always in private) and the inability to navigate social situations.<br />
I have accepted the challenges of advocating for myself as a post menopausal woman on the autistic spectrum. Now that I am accommodating my neurological uniqueness I am finding greater peace than I ever thought possible.<br />
I wish that same peace for you. <img src='http://www.journeyswithautism.com/wp-includes/images/smilies/icon_smile.gif' alt=':)' class='wp-smiley' /> </p>
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		<title>By: Rachel</title>
		<link>http://www.journeyswithautism.com/2009/04/26/seeing-my-life-from-a-sensory-perspective/comment-page-1/#comment-46272</link>
		<dc:creator>Rachel</dc:creator>
		<pubDate>Wed, 20 May 2009 00:27:03 +0000</pubDate>
		<guid isPermaLink="false">http://www.aspergerjourneys.com/?p=1957#comment-46272</guid>
		<description>And thank you for being here, Susanne!</description>
		<content:encoded><![CDATA[<p>And thank you for being here, Susanne!</p>
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		<title>By: Susanne Liley</title>
		<link>http://www.journeyswithautism.com/2009/04/26/seeing-my-life-from-a-sensory-perspective/comment-page-1/#comment-46175</link>
		<dc:creator>Susanne Liley</dc:creator>
		<pubDate>Tue, 19 May 2009 20:13:12 +0000</pubDate>
		<guid isPermaLink="false">http://www.aspergerjourneys.com/?p=1957#comment-46175</guid>
		<description>“My mother was always certain that she was right and knew the proper way to do things. And everything—everything—was always about her.”

I know this far better than I have ever wanted to. This is my mother, hook line and sinker but also mix in the constant interrupting AND dominating every situation. Unfortunately she is living with my husband and I at the moment (hopefully for only a few more months) and feels the need to create crisis’ large and small for her to be able to come to the rescue so she feels like she has done something worthwhile that day. It’s been staying at the point that my skin gets prickly being around her for very long because everything in me is getting so severely agitated. I cannot count any more how she takes credit for things that I have done, without having a clue (or caring) that she did. Here’s a blurb from a couple of months ago:

Mom: “Have you seen my coffee mug with the dollar bill on it?”
Me: “No, have you looked (list random places)?”
Mom: “Yes, and I can’t seem to find it ANYWHERE!”
Me: “I’ll try to keep an eye out for it.”
-She tells my husband about it too and then ten minutes pass by-
Me: “Mom, I found your mug.”
Mom: “Where WAS it? I looked EVERYWHERE!” (no she didn’t, she was just expecting me to drop everything and hunt it down for her. I just happened to see it by accident.)
Me: “On the shelf above where the mugs normally are.”
-Five more minutes pass before my husband enters the room-
Mom: “Oh Craig, you’ll be glad to know that I found my mug.”
Me: “WHO found your mug?”
Mom: “Oh, well I guess you did, but at least I have it now.”
(Did you happen to notice the lack of a simple Thank You from her? I say it to my husband all the time because I know it is emotionally important, but my mother almost never says it (without sarcasm) and yet she was the one who taught me that you ALWAYS say it!)

The one thing I cannot shake is how deeply I feel cut every single time she does things like that. Normally it catches me so off guard that I’m too dumbfounded to say anything. By the time I realize how I’m actually feeling, from how she reacted to me or treated me, that it would just be too much trouble trying to bring it back up. Every single time it cuts just as badly as it did when I was a kid. Too many days I still wonder if I’m sane, and if I am, how much longer it will last. 

Quote from Millie:
&quot;And there we languish and get stuck - jammed into a state of perpetual emotional analysis that is easy for us women with AS and all the ASD problems remain and cause havoc… the vestibular issues, the sensory processing, the need for solitude (ten hours a day would be good for me) and so we remain jammed and stuck, afraid of life and still not understanding why it is we are the way we are.&quot;

My family (mother and siblings) have accused me of “thinking too much” and being too introverted, somehow thinking it was something that could just be switched off. I’ve had a bit of a clue that the rest of the world probably wasn’t like that, but this is the first time that I’ve seen a full refection of myself in tat area without any masks in someone else’s words. So much of what I’ve thought over for so many years was simply trying to figure out how I was “broken.” This coming from someone who can take something out of a box and assemble it and only getting agitated if I HAVE TO read the directions, from simple to complex. Now finally realizing that I’m not broken.

&quot;I was ready to kill myself…. because there was still other problems not being addressed. I was still a strange misfit mystery to myself. and to others. I worked harder at it than anyone I know with scant results. I remained firmly set in a preference for all things quiet, small, routine and safe and reclusive and special interests based.&quot;

Clearly and simply this explains how I felt inside when my husband finally took me into our doctor and he diagnosed me as chronic depressive. It was the worst episode of depression I’ve ever had in my life (and that’s saying something.) The brokenness swallowed me whole and I was sitting at our computer every day (often for 18+ hours) unconsciously trying to get my system to slow down and simply have my heart stop. I’ve known that I can’t commit suicide because my skin screams even just thinking about it (hey it’s a plus side to being hypersensitive!) but that was about as close as I could come. It was also the same period in my life that I realized that I literally couldn’t remember how to laugh. It had been 6 months to a year before that I could remember laughing last, but thinking about it then made me nauseous. When I was little I was ALWAYS laughing, even in high school a friend would call me giggle box because I’d be laughing so much (and usually because I was that happy.) 

I want to cry (happy tears) because I feel like I have finally found where I belong, without having to explain myself, or hide behind deceiving masks.

Thank you, fellow Aspies, for having the courage to be yourselves.</description>
		<content:encoded><![CDATA[<p>“My mother was always certain that she was right and knew the proper way to do things. And everything—everything—was always about her.”</p>
<p>I know this far better than I have ever wanted to. This is my mother, hook line and sinker but also mix in the constant interrupting AND dominating every situation. Unfortunately she is living with my husband and I at the moment (hopefully for only a few more months) and feels the need to create crisis’ large and small for her to be able to come to the rescue so she feels like she has done something worthwhile that day. It’s been staying at the point that my skin gets prickly being around her for very long because everything in me is getting so severely agitated. I cannot count any more how she takes credit for things that I have done, without having a clue (or caring) that she did. Here’s a blurb from a couple of months ago:</p>
<p>Mom: “Have you seen my coffee mug with the dollar bill on it?”<br />
Me: “No, have you looked (list random places)?”<br />
Mom: “Yes, and I can’t seem to find it ANYWHERE!”<br />
Me: “I’ll try to keep an eye out for it.”<br />
-She tells my husband about it too and then ten minutes pass by-<br />
Me: “Mom, I found your mug.”<br />
Mom: “Where WAS it? I looked EVERYWHERE!” (no she didn’t, she was just expecting me to drop everything and hunt it down for her. I just happened to see it by accident.)<br />
Me: “On the shelf above where the mugs normally are.”<br />
-Five more minutes pass before my husband enters the room-<br />
Mom: “Oh Craig, you’ll be glad to know that I found my mug.”<br />
Me: “WHO found your mug?”<br />
Mom: “Oh, well I guess you did, but at least I have it now.”<br />
(Did you happen to notice the lack of a simple Thank You from her? I say it to my husband all the time because I know it is emotionally important, but my mother almost never says it (without sarcasm) and yet she was the one who taught me that you ALWAYS say it!)</p>
<p>The one thing I cannot shake is how deeply I feel cut every single time she does things like that. Normally it catches me so off guard that I’m too dumbfounded to say anything. By the time I realize how I’m actually feeling, from how she reacted to me or treated me, that it would just be too much trouble trying to bring it back up. Every single time it cuts just as badly as it did when I was a kid. Too many days I still wonder if I’m sane, and if I am, how much longer it will last. </p>
<p>Quote from Millie:<br />
&#8220;And there we languish and get stuck &#8211; jammed into a state of perpetual emotional analysis that is easy for us women with AS and all the ASD problems remain and cause havoc… the vestibular issues, the sensory processing, the need for solitude (ten hours a day would be good for me) and so we remain jammed and stuck, afraid of life and still not understanding why it is we are the way we are.&#8221;</p>
<p>My family (mother and siblings) have accused me of “thinking too much” and being too introverted, somehow thinking it was something that could just be switched off. I’ve had a bit of a clue that the rest of the world probably wasn’t like that, but this is the first time that I’ve seen a full refection of myself in tat area without any masks in someone else’s words. So much of what I’ve thought over for so many years was simply trying to figure out how I was “broken.” This coming from someone who can take something out of a box and assemble it and only getting agitated if I HAVE TO read the directions, from simple to complex. Now finally realizing that I’m not broken.</p>
<p>&#8220;I was ready to kill myself…. because there was still other problems not being addressed. I was still a strange misfit mystery to myself. and to others. I worked harder at it than anyone I know with scant results. I remained firmly set in a preference for all things quiet, small, routine and safe and reclusive and special interests based.&#8221;</p>
<p>Clearly and simply this explains how I felt inside when my husband finally took me into our doctor and he diagnosed me as chronic depressive. It was the worst episode of depression I’ve ever had in my life (and that’s saying something.) The brokenness swallowed me whole and I was sitting at our computer every day (often for 18+ hours) unconsciously trying to get my system to slow down and simply have my heart stop. I’ve known that I can’t commit suicide because my skin screams even just thinking about it (hey it’s a plus side to being hypersensitive!) but that was about as close as I could come. It was also the same period in my life that I realized that I literally couldn’t remember how to laugh. It had been 6 months to a year before that I could remember laughing last, but thinking about it then made me nauseous. When I was little I was ALWAYS laughing, even in high school a friend would call me giggle box because I’d be laughing so much (and usually because I was that happy.) </p>
<p>I want to cry (happy tears) because I feel like I have finally found where I belong, without having to explain myself, or hide behind deceiving masks.</p>
<p>Thank you, fellow Aspies, for having the courage to be yourselves.</p>
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		<title>By: Rachel</title>
		<link>http://www.journeyswithautism.com/2009/04/26/seeing-my-life-from-a-sensory-perspective/comment-page-1/#comment-35196</link>
		<dc:creator>Rachel</dc:creator>
		<pubDate>Sun, 03 May 2009 23:10:53 +0000</pubDate>
		<guid isPermaLink="false">http://www.aspergerjourneys.com/?p=1957#comment-35196</guid>
		<description>Jennifer, thank you so much. 

Many years ago, I consulted a rabbi about whether I was making the right choice. After consulting with other rabbis, he said the decision was unanimous: Yes, absolutely. 

There were two basic reasons. First, with parents that are so difficult, one might be provoked to say something harsh to them that would dishonor them; better to detach than to dishonor. Second, it is a positive mitzvah to break contact when continued contact causes one to feel that one&#039;s life is not worth living. Saving a life is the single most important thing one can do.

There&#039;s a lot of wisdom in our tradition.</description>
		<content:encoded><![CDATA[<p>Jennifer, thank you so much. </p>
<p>Many years ago, I consulted a rabbi about whether I was making the right choice. After consulting with other rabbis, he said the decision was unanimous: Yes, absolutely. </p>
<p>There were two basic reasons. First, with parents that are so difficult, one might be provoked to say something harsh to them that would dishonor them; better to detach than to dishonor. Second, it is a positive mitzvah to break contact when continued contact causes one to feel that one&#8217;s life is not worth living. Saving a life is the single most important thing one can do.</p>
<p>There&#8217;s a lot of wisdom in our tradition.</p>
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		<title>By: Jennifer</title>
		<link>http://www.journeyswithautism.com/2009/04/26/seeing-my-life-from-a-sensory-perspective/comment-page-1/#comment-35172</link>
		<dc:creator>Jennifer</dc:creator>
		<pubDate>Sun, 03 May 2009 22:26:15 +0000</pubDate>
		<guid isPermaLink="false">http://www.aspergerjourneys.com/?p=1957#comment-35172</guid>
		<description>I read something today that made me think of you:
&quot;When the chafetz Chaim was young he stayed by peoples houses while he was in Yeshiva. Once a wealthy person refused to host him. So the Chafetz Chaim would walk in the cold winter to Yeshiva. Naturally he got sick and missed school anyway. 

Later in life the Chafetz Chaim became a great sage. The wealthy gentlemen remembered his inhospitality and went to apologize to him. The Chafetz Chaim responded: &quot;I can forgive you for the pneumonia but I will not forgive you for depriving me of the right to learn for several months&quot; 

We learn from this story that you dont have to forgive people if you have been terribly wronged. &quot;

I really feel for you,  admire you for your brave decision-making, and hope that your life remains happy and fulfilled.</description>
		<content:encoded><![CDATA[<p>I read something today that made me think of you:<br />
&#8220;When the chafetz Chaim was young he stayed by peoples houses while he was in Yeshiva. Once a wealthy person refused to host him. So the Chafetz Chaim would walk in the cold winter to Yeshiva. Naturally he got sick and missed school anyway. </p>
<p>Later in life the Chafetz Chaim became a great sage. The wealthy gentlemen remembered his inhospitality and went to apologize to him. The Chafetz Chaim responded: &#8220;I can forgive you for the pneumonia but I will not forgive you for depriving me of the right to learn for several months&#8221; </p>
<p>We learn from this story that you dont have to forgive people if you have been terribly wronged. &#8221;</p>
<p>I really feel for you,  admire you for your brave decision-making, and hope that your life remains happy and fulfilled.</p>
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		<title>By: Rachel</title>
		<link>http://www.journeyswithautism.com/2009/04/26/seeing-my-life-from-a-sensory-perspective/comment-page-1/#comment-31954</link>
		<dc:creator>Rachel</dc:creator>
		<pubDate>Thu, 30 Apr 2009 00:37:35 +0000</pubDate>
		<guid isPermaLink="false">http://www.aspergerjourneys.com/?p=1957#comment-31954</guid>
		<description>Stat Mama, hugs to you, for everything you&#039;ve been through. It helps so much to hear about your experience, and to know, once again, that I&#039;m not alone.</description>
		<content:encoded><![CDATA[<p>Stat Mama, hugs to you, for everything you&#8217;ve been through. It helps so much to hear about your experience, and to know, once again, that I&#8217;m not alone.</p>
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		<title>By: Stat Mama</title>
		<link>http://www.journeyswithautism.com/2009/04/26/seeing-my-life-from-a-sensory-perspective/comment-page-1/#comment-31918</link>
		<dc:creator>Stat Mama</dc:creator>
		<pubDate>Wed, 29 Apr 2009 23:43:38 +0000</pubDate>
		<guid isPermaLink="false">http://www.aspergerjourneys.com/?p=1957#comment-31918</guid>
		<description>I also want to say that I truly respect both your honesty and your insight to your own being and feelings.  One thing aspies are very good at is thinking and examining.  This can make for some excellent introspection, and this seems to be the case with you.</description>
		<content:encoded><![CDATA[<p>I also want to say that I truly respect both your honesty and your insight to your own being and feelings.  One thing aspies are very good at is thinking and examining.  This can make for some excellent introspection, and this seems to be the case with you.</p>
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		<title>By: Stat Mama</title>
		<link>http://www.journeyswithautism.com/2009/04/26/seeing-my-life-from-a-sensory-perspective/comment-page-1/#comment-31915</link>
		<dc:creator>Stat Mama</dc:creator>
		<pubDate>Wed, 29 Apr 2009 23:39:53 +0000</pubDate>
		<guid isPermaLink="false">http://www.aspergerjourneys.com/?p=1957#comment-31915</guid>
		<description>Ugh Rachel.  I feel that.  I went through unspeakable forms of hell as a child, ranging all sorts of abuse and neglect, and the ramifications of all of it.  For years, I felt unworthy of life and nearly lost my life to eating disorders and self-injury.  What saved me was breaking contact with my mother, instead of continuing to try to win her approval and gain the sort of relationship I&#039;d always wished for.  I mistakenly believed the failing was my own.  It was not.  In the time spent away from her, I healed so much, and learned so much.  What you said, &quot;my senses are repelled by them&quot;, I could not have said it better, and I don&#039;t think I could have said it as well.  My feelings toward my mother are a visceral repulsion.  I am also quite repelled intellectually at times, but mostly it is a very sensory-feeling issue.  She causes my whole being discomfort, and the only thing worse is having the two of them together in the same place.  Oh.  My.</description>
		<content:encoded><![CDATA[<p>Ugh Rachel.  I feel that.  I went through unspeakable forms of hell as a child, ranging all sorts of abuse and neglect, and the ramifications of all of it.  For years, I felt unworthy of life and nearly lost my life to eating disorders and self-injury.  What saved me was breaking contact with my mother, instead of continuing to try to win her approval and gain the sort of relationship I&#8217;d always wished for.  I mistakenly believed the failing was my own.  It was not.  In the time spent away from her, I healed so much, and learned so much.  What you said, &#8220;my senses are repelled by them&#8221;, I could not have said it better, and I don&#8217;t think I could have said it as well.  My feelings toward my mother are a visceral repulsion.  I am also quite repelled intellectually at times, but mostly it is a very sensory-feeling issue.  She causes my whole being discomfort, and the only thing worse is having the two of them together in the same place.  Oh.  My.</p>
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		<title>By: Rachel</title>
		<link>http://www.journeyswithautism.com/2009/04/26/seeing-my-life-from-a-sensory-perspective/comment-page-1/#comment-30684</link>
		<dc:creator>Rachel</dc:creator>
		<pubDate>Tue, 28 Apr 2009 13:11:24 +0000</pubDate>
		<guid isPermaLink="false">http://www.aspergerjourneys.com/?p=1957#comment-30684</guid>
		<description>John, Millie, Ben, and Erin: Thanks so much for your beautiful comments. The post describes a very difficult piece of my life, so I&#039;m glad it came through as I&#039;d intended, and that you found it helpful.</description>
		<content:encoded><![CDATA[<p>John, Millie, Ben, and Erin: Thanks so much for your beautiful comments. The post describes a very difficult piece of my life, so I&#8217;m glad it came through as I&#8217;d intended, and that you found it helpful.</p>
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