Journeys with Autism Reports from Life on the Spectrum
  • Apr
    27

    Note: For posts about previous visits, including my sensory assessment, see the Occupational Therapy category, to the right of this post.

    My OT rocks! I am so lucky.

    I drove down to my OT appointment this afternoon on about 4 1/2 hours of sleep. I had gone to bed reasonably early, but then woke up at 3:45 am and couldn’t get back to sleep. Instead of fretting about it, I meditated awhile, thought about what I’d like to do with the day, and tried to relax till daybreak. Then, I got my daughter up for school and, once she was on her way, decided to do some joint compressions by going out into my front yard at 7 am and digging up what’s left of the grass. Very therapeutic. An hour and a half later, I had breakfast and then worked out on my bike. Also very therapeutic.

    Then, just before I left for my appointment, I had a nice talk with a neighbor about the work I was doing in the garden. The talk didn’t last for more than 10 minutes, so I actually succeeded in keeping track of the entire conversation. I like it when that happens.

    Finally, I got in the car and drove for an hour to my appointment. I was really looking forward to going. Why? Because my OT rocks!

    Oh, right, I already said that. Well, here’s why she rocks:

    1. She is friendly in a genuine way.
    2. She has a great sense of humor.
    3. She is sensitive to my sensory needs.
    4. She knows how hard I work just to get through the day.
    5. She wants to know how I’m doing.
    6. She is very practical.

    This list is not exhaustive, but hey, I don’t have all the time in the world here, and I’m trying to learn brevity. (How am I doing so far?)

    It seems like nearly everything we did today involved music, which was wondrous.

    But first things first: When I got there, she asked me what I needed in order to ground, and before she even got the words out of her mouth, I said, “Thumper!” (Quirky Mom, you might want to skip the rest of this paragraph.) She used that divinely inspired machine on my back, and this time, I could feel the vibrations in my nasal cavities and in my lips. Pure heaven.

    Then, she asked me how the Therapeutic Listening was going. I really love the Mozart for Modulation CD, but found that I’ve been getting a lot of migraines lately. She thought it might have to do with the fact that I sometimes listen for more than a half hour at a time. When I’m out gardening, I lose track of time and have probably listened to the CD for 45 minutes to an hour in one session. The music is really working my ears, so even though I don’t feel like I’m working hard, I am. She said that for the next two weeks, I should start by listening to the CD for 20 minutes, twice a day, once while resting and once while being active (doing chores, having dinner, and so forth). I’m supposed to increase my listening time by 2-3 minutes every 1-2 days.

    That sounded good. Then, I got to choose a new CD. I started by listening to one that had children’s songs on it. It was kind of sweet and appealed to the childlike Aspie aspects of my soul, but when the alphabet song started, my brain got really hooked on the letters. The whole point of the exercise is to listen to the CD without fully concentrating on it. In other words, the point is to multi-task. If I get hooked on the letters, I’m giving the music too much attention.

    So she gave me another CD, one with water and dolphin sounds, along with some sort of music in the background. It drove me nuts. The music had no center. I don’t know why some people find that relaxing, because it makes me want to cry.

    My OT said we didn’t have a lot more choices for this stage in my Therapeutic Listening life, but perhaps I’d like a Vivaldi for Modulation CD? OMG! Heaven. Absolute heaven. I love Vivaldi with a passion. So I was a happy camper. I listened to Vivaldi while my OT asked me a lot of questions about other parts of my sensory diet. I’ll share a little about that.

    I love working out on my bike and singing with the Annie Lennox Medusa CD. It’s a 45-minute CD, and I listen to it twice. I’m noticing that my singing voice is getting much stronger and clearer, and that I’m singing with more of my body. It feels great. My husband loves the CD too, so sometimes, he’ll come in and do paperwork and sing with me. It’s way fun.

    I’ve also relearned Torah cantillation, and have been choosing random portions of Torah to chant every couple of days. It makes me feel really great to know that I can just pick up any passage and follow the cantillation marks without much trouble. When my husband and I were leading services, I would prepare a Torah portion, and it always felt like a lot of pressure. Now that I’m doing things for my own enjoyment, they’re much more fun. I’m not chanting Torah in preparation for any kind of public gathering. I’m just chanting because I love it. In Jewish tradition, it’s customary to rock back and forth when you’re chanting or praying, so I get to do movement that feels very natural to me.

    A few weeks back, I xeroxed some lines from Torah and put them on a door in the kitchen. There are three groups of words. I have to look up to see one, I have to look directly in front of me to see another, and I have to look down to see the last one. My task is to start from 10 feet away, chanting from the top, while walking forward and backward. Kind of like walking and chewing gum, except harder. I had been practicing this exercise a few weeks ago, and the OT said to reinstate it. I enjoyed the exercise before, so that will be fun as well.

    So, there you have it. I left the appointment feeling very relaxed and focused. On my way home, I even had the energy to stop at a store that sells perennials. I bought a few (okay, eight) to bring home and plant. When I got home, I was quite tired, but lying down didn’t help, so I went back out and attacked the remaining grass in my front yard. It is now gone. Time to start planting the garden!

    © 2009 by Rachel Cohen-Rottenberg

    5 Comments

5 Responses to “Music and My Fifth OT Visit”

  1. Will you hate me if I tell you that Vivaldi is baroque? But it’s good baroque, not recorder-torture baroque. ;)

    And you know damn well that telling me to skip something will just make me read it 2 or 3 times instead of once. (You did know that, right? I swear sometimes you know me better than I do.) Ewwwwww, vibrating nasal cavities. I don’t know whether that’s worse than the teeth or not. I’ve got tooth sensitivity issues (not just cold sensitivity, but vibration sensitivity, metal sensitivity, etc.), but the nasal thing reminds me of the aftermath of my sinus surgery several years ago. *shudder* Still, I’m glad it works for you. I could use something to ground me tonight.

  2. I just Googled thumpers and found a website for them! im jealous, i want one now :) Which model does your OT have? The smallest one isnt that terribly expensive if I had some extra money which I kind of don’t, but still. You could perhaps get one for your home use and have that feeling all the time :)
    Kate

  3. Quirky Mom, I could never hate you, even when you’re telling me that Vivaldi is baroque. I’d forgotten that Vivaldi has the power to heal even the worst moments.

    After reading my Aspie Hell post, my OT sent me an email and said that she hoped I could forget about the bad experience at the co-op because there were CDs with baroque music she wanted me to use. I told her it would be all right, as long as no recorders were involved. ;-)

    Kate: My OT uses the Thumper Pro Massager. The best price I’ve found for it is $299, so I haven’t gotten one. Yet. I have a small savings account that I try to use for purchases that aren’t in the budget, so I’m still deciding about whether to get one. If I do, I’ll have a party and invite everyone to try it out. (Quirky Mom, don’t worry. I can have my daughter show you around the neighborhood while the Thumper is in plain view.) :-)

  4. OMG!!! I go away for a few days to take care of my aging dad, and what happens??? The LW digs up all the grass from the front yard to plant (get this…) FLOWERS! Well, I gotta love her!
    PS to site administrator: I’m under the impression that I’m to be referred to as “The Husband.” What’s with this oh-so-lame “my husband” stuff? Sounds so 50s! Well, as they say, you can call me anything you want, just don’t call me late for dinner.

  5. Your OT posts always make me feel calmer just reading them! I so wish I could find an OT for myself, especially as exceptional an OT as you have found. And I desperately want a weighted blanket (I’ve been making modified versions myself for years without knowing why it made me feel better).

    By the way, the dolphin sounds…GAAAH. I once bought a CD of the beach. I was thinking nice, calm waves lapping at the shore. Oh, there was that, yes. But there were also gulls screeching through my peace and shattering the whole point of the exercise. Why do people want to hear that? Meh.

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About Me

I'm Rachel Cohen-Rottenberg, and I publish this blog, Journeys with Autism. I'm a wife, mother, writer, singer, artist, photographer, community volunteer, and the chapter leader for the Vermont Chapter of the Autistic Self Advocacy Network (ASAN).


At the age of 50, I awoke to my place on the autism spectrum and discovered a world of gifts, struggles, and life-changing possibilities. My latest book, The Uncharted Path: My Journey with Late-Diagnosed Autism, was published in July of 2010. My work has also appeared in Shift Journal of Alternatives: Neurodiversity and Social Change and in the Disability Rights and Neurodiversity section of the ASAN website.

My Memoir

"The Uncharted Path is an autism autobiography unlike any I’ve ever read.....I’d recommend The Uncharted Path to anyone on the spectrum, to anyone who has friends or relatives on the spectrum, and to anyone who cares for people on the spectrum. Her book is written straight from the heart.” —Gavin Bollard, author of Life with Asperger’s


“Cohen-Rottenberg is emotionally honest and skilled at relaying the stories from her childhood and adulthood that made her the person she is today....A highly recommended read."—Kate Goldfield, author of Common Scents: Adventures with Autism and Chemical Sensitivity


“What Rachel has written, few others would be able to....An enlightening journey."—Jon Gilbert, author of Same Child, Different Day


My memoir The Uncharted Path: My Journey with Late-Diagnosed Autism is now available in paperback for $17.95 and in PDF format for $8.95.


To purchase the book, please contact me by email. I accept payment via PayPal, by check, or by money order. You can also find the book for sale in paperback on Amazon.com.


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Rachel Cohen-Rottenberg
rachel@journeyswithautism.com

My Visual Art

Sojourning in the Visual World www.sojournerartist.com

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