<?xml version="1.0" encoding="UTF-8"?><rss version="2.0"
	xmlns:content="http://purl.org/rss/1.0/modules/content/"
	xmlns:dc="http://purl.org/dc/elements/1.1/"
	xmlns:atom="http://www.w3.org/2005/Atom"
	xmlns:sy="http://purl.org/rss/1.0/modules/syndication/"
		>
<channel>
	<title>Comments on: The &#8220;Intense World Syndrome&#8221; Theory of Autism</title>
	<atom:link href="http://www.journeyswithautism.com/2009/06/02/intense-world-syndrome/feed/" rel="self" type="application/rss+xml" />
	<link>http://www.journeyswithautism.com/2009/06/02/intense-world-syndrome/</link>
	<description>Ethics, Disability Rights, and Reports from Life on the Spectrum</description>
	<lastBuildDate>Fri, 03 Feb 2012 16:32:50 +0000</lastBuildDate>
	<sy:updatePeriod>hourly</sy:updatePeriod>
	<sy:updateFrequency>1</sy:updateFrequency>
	<generator>http://wordpress.org/?v=3.3.1</generator>
	<item>
		<title>By: Michelle</title>
		<link>http://www.journeyswithautism.com/2009/06/02/intense-world-syndrome/comment-page-1/#comment-205909</link>
		<dc:creator>Michelle</dc:creator>
		<pubDate>Tue, 27 Dec 2011 03:54:08 +0000</pubDate>
		<guid isPermaLink="false">http://www.aspergerjourneys.com/?p=2566#comment-205909</guid>
		<description>I think what he means to say is &#039;neurotypical people can&#039;t be trusted&#039; haha! as opposed to science which can always be trusted.....riiiiight</description>
		<content:encoded><![CDATA[<p>I think what he means to say is &#8216;neurotypical people can&#8217;t be trusted&#8217; haha! as opposed to science which can always be trusted&#8230;..riiiiight</p>
]]></content:encoded>
	</item>
	<item>
		<title>By: Alex</title>
		<link>http://www.journeyswithautism.com/2009/06/02/intense-world-syndrome/comment-page-1/#comment-158381</link>
		<dc:creator>Alex</dc:creator>
		<pubDate>Sun, 22 May 2011 19:42:15 +0000</pubDate>
		<guid isPermaLink="false">http://www.aspergerjourneys.com/?p=2566#comment-158381</guid>
		<description>&quot;You can’t just ask people things because people cannot be trusted.&quot;

You&#039;re saying there are no people who can consistently report how their brains work? This doesn&#039;t seem correct. There&#039;s no question that most people can&#039;t, but whenever I write down how I think my brain is working, I always find that the model I came up with is either directly support by academic literature, or else is consistent with the existent academic literature. (And thus is what we would assume to be correct based on science.)

And, similarly, it clearly isn&#039;t just me that can do this. Anyone who has ever read Temple Grandin&#039;s book Animals in Translation should be able to recognize that this is a real ability that some people have.</description>
		<content:encoded><![CDATA[<p>&#8220;You can’t just ask people things because people cannot be trusted.&#8221;</p>
<p>You&#8217;re saying there are no people who can consistently report how their brains work? This doesn&#8217;t seem correct. There&#8217;s no question that most people can&#8217;t, but whenever I write down how I think my brain is working, I always find that the model I came up with is either directly support by academic literature, or else is consistent with the existent academic literature. (And thus is what we would assume to be correct based on science.)</p>
<p>And, similarly, it clearly isn&#8217;t just me that can do this. Anyone who has ever read Temple Grandin&#8217;s book Animals in Translation should be able to recognize that this is a real ability that some people have.</p>
]]></content:encoded>
	</item>
	<item>
		<title>By: drhouse</title>
		<link>http://www.journeyswithautism.com/2009/06/02/intense-world-syndrome/comment-page-1/#comment-152083</link>
		<dc:creator>drhouse</dc:creator>
		<pubDate>Tue, 03 May 2011 12:28:35 +0000</pubDate>
		<guid isPermaLink="false">http://www.aspergerjourneys.com/?p=2566#comment-152083</guid>
		<description>They need a rat model because its unethical to cut open your brain to figure out how you work. The tables in their paper explain why they think it was a valid model.

You can&#039;t just ask people things because people cannot be trusted. Not even autistic people. Self reported experiences are notoriously inaccurate. People try and figure themselves out, why they do things, what it all means. The second you begin thinking about yourself is the second you can no longer be trusted to accurately self report the nature of your experience.

But you know, oddly enough, it probably WAS talking to autistic people who gave them this idea, its just that then, they had to find evidence.</description>
		<content:encoded><![CDATA[<p>They need a rat model because its unethical to cut open your brain to figure out how you work. The tables in their paper explain why they think it was a valid model.</p>
<p>You can&#8217;t just ask people things because people cannot be trusted. Not even autistic people. Self reported experiences are notoriously inaccurate. People try and figure themselves out, why they do things, what it all means. The second you begin thinking about yourself is the second you can no longer be trusted to accurately self report the nature of your experience.</p>
<p>But you know, oddly enough, it probably WAS talking to autistic people who gave them this idea, its just that then, they had to find evidence.</p>
]]></content:encoded>
	</item>
	<item>
		<title>By: Intense World Syndrome Hypothesis of #Autism #Aspergers &#8211; heard of it? http://www.journeyswithautism.com/2009/06/02/intense-world-syndrome/ &#124; My Autism Site &#124; All About Autism</title>
		<link>http://www.journeyswithautism.com/2009/06/02/intense-world-syndrome/comment-page-1/#comment-84517</link>
		<dc:creator>Intense World Syndrome Hypothesis of #Autism #Aspergers &#8211; heard of it? http://www.journeyswithautism.com/2009/06/02/intense-world-syndrome/ &#124; My Autism Site &#124; All About Autism</dc:creator>
		<pubDate>Mon, 02 Aug 2010 14:04:57 +0000</pubDate>
		<guid isPermaLink="false">http://www.aspergerjourneys.com/?p=2566#comment-84517</guid>
		<description>[...] Read the rest here: Intense World Syndrome Hypothesis of #Autism #Aspergers &#8211; heard of it? http://www.journeyswith... [...]</description>
		<content:encoded><![CDATA[<p>[...] Read the rest here: Intense World Syndrome Hypothesis of #Autism #Aspergers &#8211; heard of it? <a href="http://www.journeyswith.." rel="nofollow">http://www.journeyswith..</a>. [...]</p>
]]></content:encoded>
	</item>
	<item>
		<title>By: Bill</title>
		<link>http://www.journeyswithautism.com/2009/06/02/intense-world-syndrome/comment-page-1/#comment-83717</link>
		<dc:creator>Bill</dc:creator>
		<pubDate>Thu, 22 Jul 2010 20:09:11 +0000</pubDate>
		<guid isPermaLink="false">http://www.aspergerjourneys.com/?p=2566#comment-83717</guid>
		<description>More probable explanations for the existence of Autism Spectrum Differences (and other differences):

1) Autistic Symphony by Alan Griswold http://autisticsymphony.com/

2) The Neanderthal theory by Leif Ekblad http://www.rdos.net/eng/asperger.htm

3) Autism and the Four-pole Hypothesis by Andrew Lehman http://www.neoteny.org/2009/01/20/autism-and-the-four-pole-hypothesis/
   http://www.originsofautism.com/ http://www.neoteny.org/ http://sexualselection.org/

4) A Topological Theory of Autism by Gregory B. Yates http://www.autismtheory.org/topotheory.html</description>
		<content:encoded><![CDATA[<p>More probable explanations for the existence of Autism Spectrum Differences (and other differences):</p>
<p>1) Autistic Symphony by Alan Griswold <a href="http://autisticsymphony.com/" rel="nofollow">http://autisticsymphony.com/</a></p>
<p>2) The Neanderthal theory by Leif Ekblad <a href="http://www.rdos.net/eng/asperger.htm" rel="nofollow">http://www.rdos.net/eng/asperger.htm</a></p>
<p>3) Autism and the Four-pole Hypothesis by Andrew Lehman <a href="http://www.neoteny.org/2009/01/20/autism-and-the-four-pole-hypothesis/" rel="nofollow">http://www.neoteny.org/2009/01/20/autism-and-the-four-pole-hypothesis/</a><br />
   <a href="http://www.originsofautism.com/" rel="nofollow">http://www.originsofautism.com/</a> <a href="http://www.neoteny.org/" rel="nofollow">http://www.neoteny.org/</a> <a href="http://sexualselection.org/" rel="nofollow">http://sexualselection.org/</a></p>
<p>4) A Topological Theory of Autism by Gregory B. Yates <a href="http://www.autismtheory.org/topotheory.html" rel="nofollow">http://www.autismtheory.org/topotheory.html</a></p>
]]></content:encoded>
	</item>
	<item>
		<title>By: Adrian</title>
		<link>http://www.journeyswithautism.com/2009/06/02/intense-world-syndrome/comment-page-1/#comment-80235</link>
		<dc:creator>Adrian</dc:creator>
		<pubDate>Tue, 08 Jun 2010 09:29:10 +0000</pubDate>
		<guid isPermaLink="false">http://www.aspergerjourneys.com/?p=2566#comment-80235</guid>
		<description>Thanks to Rachel&#039;s vector to this article, my search for explanations has finally produced something that makes sense to me. After struggling (for more than four decades) to understand how everyone else copes with the world around them, it has slowly dawned on me that the challenge is far from equal. How on Earth is one supposed to know what&#039;s expected (normal) in terms of emotional response beyond the default assumption that everyone&#039;s the same? A stimulus/response test would easily nail this - if only I could be coaxed into watching a dramatic movie while connected to a polygraph an objective measure could be obtained. But too much choking on the lump in my throat while stifling the tears elicited by something as tame as an afternoon TV show for children has all but stopped me exposing myself to such ordeals.

Now I can restore ASD to the list of suspects after misguidedly ruling it out on the grounds of its supposed attenuation of empathy. Self-diagnosis appears to be the only option for ASD under the NHS.</description>
		<content:encoded><![CDATA[<p>Thanks to Rachel&#8217;s vector to this article, my search for explanations has finally produced something that makes sense to me. After struggling (for more than four decades) to understand how everyone else copes with the world around them, it has slowly dawned on me that the challenge is far from equal. How on Earth is one supposed to know what&#8217;s expected (normal) in terms of emotional response beyond the default assumption that everyone&#8217;s the same? A stimulus/response test would easily nail this &#8211; if only I could be coaxed into watching a dramatic movie while connected to a polygraph an objective measure could be obtained. But too much choking on the lump in my throat while stifling the tears elicited by something as tame as an afternoon TV show for children has all but stopped me exposing myself to such ordeals.</p>
<p>Now I can restore ASD to the list of suspects after misguidedly ruling it out on the grounds of its supposed attenuation of empathy. Self-diagnosis appears to be the only option for ASD under the NHS.</p>
]]></content:encoded>
	</item>
	<item>
		<title>By: Phin</title>
		<link>http://www.journeyswithautism.com/2009/06/02/intense-world-syndrome/comment-page-1/#comment-79756</link>
		<dc:creator>Phin</dc:creator>
		<pubDate>Sun, 30 May 2010 11:13:26 +0000</pubDate>
		<guid isPermaLink="false">http://www.aspergerjourneys.com/?p=2566#comment-79756</guid>
		<description>Isn&#039;t this great? To have someone out there recognize that we not only have feelings but INTENSE feelings! I&#039;ve always known that I felt &quot;too much&quot;. Long, long before I was told I had a secure place on the autistic spectrum (late, very late, and I could not accept that I had NO empathy - I look around at my family, and I may be autistic, but sometimes I think I&#039;m the only one who ever really felt anything for anyone else and certainly the only one who was there for them when things fell apart...)

I do not know if its devastating (for many it may be), but it&#039;s sure not easy to be hypersensitive or autistic or whatever you want to call it. And it&#039;s even harder when people take your withdrawal (which is for pure survival) for all the wrong reasons.</description>
		<content:encoded><![CDATA[<p>Isn&#8217;t this great? To have someone out there recognize that we not only have feelings but INTENSE feelings! I&#8217;ve always known that I felt &#8220;too much&#8221;. Long, long before I was told I had a secure place on the autistic spectrum (late, very late, and I could not accept that I had NO empathy &#8211; I look around at my family, and I may be autistic, but sometimes I think I&#8217;m the only one who ever really felt anything for anyone else and certainly the only one who was there for them when things fell apart&#8230;)</p>
<p>I do not know if its devastating (for many it may be), but it&#8217;s sure not easy to be hypersensitive or autistic or whatever you want to call it. And it&#8217;s even harder when people take your withdrawal (which is for pure survival) for all the wrong reasons.</p>
]]></content:encoded>
	</item>
	<item>
		<title>By: Rachel Cohen-Rottenberg</title>
		<link>http://www.journeyswithautism.com/2009/06/02/intense-world-syndrome/comment-page-1/#comment-78059</link>
		<dc:creator>Rachel Cohen-Rottenberg</dc:creator>
		<pubDate>Fri, 23 Apr 2010 14:04:23 +0000</pubDate>
		<guid isPermaLink="false">http://www.aspergerjourneys.com/?p=2566#comment-78059</guid>
		<description>Sandrine,

Excellent rant. Wow. You said it all so well, and with just the right amount of outrage. :-)</description>
		<content:encoded><![CDATA[<p>Sandrine,</p>
<p>Excellent rant. Wow. You said it all so well, and with just the right amount of outrage. <img src='http://www.journeyswithautism.com/wp-includes/images/smilies/icon_smile.gif' alt=':-)' class='wp-smiley' /> </p>
]]></content:encoded>
	</item>
	<item>
		<title>By: Sandrine</title>
		<link>http://www.journeyswithautism.com/2009/06/02/intense-world-syndrome/comment-page-1/#comment-78057</link>
		<dc:creator>Sandrine</dc:creator>
		<pubDate>Fri, 23 Apr 2010 13:42:57 +0000</pubDate>
		<guid isPermaLink="false">http://www.aspergerjourneys.com/?p=2566#comment-78057</guid>
		<description>Hi Rachel

I&#039;ve just published a rant on my blog largely inspired by this post (and my bad temper...). I haven&#039;t figured out how do &#039;backlinks&#039; yet (I think that&#039;s what they&#039;re called) and wanted to let you know you&#039;d been referred to. Here&#039;s the link: http://paris-ankara.blogspot.com/2010/04/boys-will-be-boys-will-be-autistic-my.html
Needless to say, I&#039;d much value your feedback!</description>
		<content:encoded><![CDATA[<p>Hi Rachel</p>
<p>I&#8217;ve just published a rant on my blog largely inspired by this post (and my bad temper&#8230;). I haven&#8217;t figured out how do &#8216;backlinks&#8217; yet (I think that&#8217;s what they&#8217;re called) and wanted to let you know you&#8217;d been referred to. Here&#8217;s the link: <a href="http://paris-ankara.blogspot.com/2010/04/boys-will-be-boys-will-be-autistic-my.html" rel="nofollow">http://paris-ankara.blogspot.com/2010/04/boys-will-be-boys-will-be-autistic-my.html</a><br />
Needless to say, I&#8217;d much value your feedback!</p>
]]></content:encoded>
	</item>
	<item>
		<title>By: eriktrips</title>
		<link>http://www.journeyswithautism.com/2009/06/02/intense-world-syndrome/comment-page-1/#comment-75524</link>
		<dc:creator>eriktrips</dc:creator>
		<pubDate>Sun, 21 Feb 2010 02:00:15 +0000</pubDate>
		<guid isPermaLink="false">http://www.aspergerjourneys.com/?p=2566#comment-75524</guid>
		<description>I have been researching my way around the internet for a couple of years now, looking for information that could help me to discover whether I would be considered on the spectrum or not. Professional assessment of adults in this part of the US starts at about $1500, which is $3500 more than I have! I am applying for disability under a large stack of other psychiatric diagnoses, but so much would be explained by the Intense World Theory of autism, including my severe reactions to childhood trauma (that is, traumatic events that were worse than the everyday trauma I experienced and still experience just being in the world), that I am really glad that you&#039;ve done this bit of research for me! :) 

I have seen bits and pieces of this theory floating around the autist blogosphere for many months, but this is the first research article I have seen that takes a scientific approach to the idea--whatever that is worth; I know opinions on science vary, especially on NT approaches to science. I can&#039;t find any better description of my fear responses that I apparently started to exhibit in infancy in reaction to any but a very narrow set of stimuli, as well as my rather deep attachment to the intensity of my sensory and emotional experiences right up to the point where they pass the limit into pain. Sometimes I can stay with them a little beyond, sort of surfing an intense pleasure/pain circuit, but there is still a limit beyond which I cannot function.

Sociability is so fraught with emotional traps and overloaded with symbolic meaning that I feel paranoid sometimes, as though I am purposefully, or rather obsessively, reading too much into things when I have a personal stake in what they &quot;really&quot; mean, while remaining completely obtuse to those interactions that hold no consequences for me that I know of.

I still am not sure whether I seem like I am on the spectrum because I have become very sensitive to stimuli as a PTSD reaction or whether my PTSD reactions are so severe because I am hypersensitive to stimuli and therefore more easily and more deeply traumatized than another may have been in my place. I tend to think the latter when I recall stories my mother told about my behavior as a very young child, before the really major traumas occurred. Not that minor ones didn&#039;t occur everyday--they did.

Anyway. Thought I&#039;d share what this post brought up for me. I will go and read the article now. I&#039;ll just bleep out the more ridiculous remarks. Thanks for posting this.</description>
		<content:encoded><![CDATA[<p>I have been researching my way around the internet for a couple of years now, looking for information that could help me to discover whether I would be considered on the spectrum or not. Professional assessment of adults in this part of the US starts at about $1500, which is $3500 more than I have! I am applying for disability under a large stack of other psychiatric diagnoses, but so much would be explained by the Intense World Theory of autism, including my severe reactions to childhood trauma (that is, traumatic events that were worse than the everyday trauma I experienced and still experience just being in the world), that I am really glad that you&#8217;ve done this bit of research for me! <img src='http://www.journeyswithautism.com/wp-includes/images/smilies/icon_smile.gif' alt=':)' class='wp-smiley' />  </p>
<p>I have seen bits and pieces of this theory floating around the autist blogosphere for many months, but this is the first research article I have seen that takes a scientific approach to the idea&#8211;whatever that is worth; I know opinions on science vary, especially on NT approaches to science. I can&#8217;t find any better description of my fear responses that I apparently started to exhibit in infancy in reaction to any but a very narrow set of stimuli, as well as my rather deep attachment to the intensity of my sensory and emotional experiences right up to the point where they pass the limit into pain. Sometimes I can stay with them a little beyond, sort of surfing an intense pleasure/pain circuit, but there is still a limit beyond which I cannot function.</p>
<p>Sociability is so fraught with emotional traps and overloaded with symbolic meaning that I feel paranoid sometimes, as though I am purposefully, or rather obsessively, reading too much into things when I have a personal stake in what they &#8220;really&#8221; mean, while remaining completely obtuse to those interactions that hold no consequences for me that I know of.</p>
<p>I still am not sure whether I seem like I am on the spectrum because I have become very sensitive to stimuli as a PTSD reaction or whether my PTSD reactions are so severe because I am hypersensitive to stimuli and therefore more easily and more deeply traumatized than another may have been in my place. I tend to think the latter when I recall stories my mother told about my behavior as a very young child, before the really major traumas occurred. Not that minor ones didn&#8217;t occur everyday&#8211;they did.</p>
<p>Anyway. Thought I&#8217;d share what this post brought up for me. I will go and read the article now. I&#8217;ll just bleep out the more ridiculous remarks. Thanks for posting this.</p>
]]></content:encoded>
	</item>
</channel>
</rss>

