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	<title>Comments on: The &#8220;Intense World Syndrome&#8221; Theory of Autism</title>
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	<link>http://www.journeyswithautism.com/2009/06/02/intense-world-syndrome/</link>
	<description>Reports from Life on the Spectrum</description>
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		<title>By: Bill</title>
		<link>http://www.journeyswithautism.com/2009/06/02/intense-world-syndrome/comment-page-1/#comment-83717</link>
		<dc:creator>Bill</dc:creator>
		<pubDate>Thu, 22 Jul 2010 20:09:11 +0000</pubDate>
		<guid isPermaLink="false">http://www.aspergerjourneys.com/?p=2566#comment-83717</guid>
		<description>More probable explanations for the existence of Autism Spectrum Differences (and other differences):

1) Autistic Symphony by Alan Griswold http://autisticsymphony.com/

2) The Neanderthal theory by Leif Ekblad http://www.rdos.net/eng/asperger.htm

3) Autism and the Four-pole Hypothesis by Andrew Lehman http://www.neoteny.org/2009/01/20/autism-and-the-four-pole-hypothesis/
   http://www.originsofautism.com/ http://www.neoteny.org/ http://sexualselection.org/

4) A Topological Theory of Autism by Gregory B. Yates http://www.autismtheory.org/topotheory.html</description>
		<content:encoded><![CDATA[<p>More probable explanations for the existence of Autism Spectrum Differences (and other differences):</p>
<p>1) Autistic Symphony by Alan Griswold <a href="http://autisticsymphony.com/" rel="nofollow">http://autisticsymphony.com/</a></p>
<p>2) The Neanderthal theory by Leif Ekblad <a href="http://www.rdos.net/eng/asperger.htm" rel="nofollow">http://www.rdos.net/eng/asperger.htm</a></p>
<p>3) Autism and the Four-pole Hypothesis by Andrew Lehman <a href="http://www.neoteny.org/2009/01/20/autism-and-the-four-pole-hypothesis/" rel="nofollow">http://www.neoteny.org/2009/01/20/autism-and-the-four-pole-hypothesis/</a><br />
   <a href="http://www.originsofautism.com/" rel="nofollow">http://www.originsofautism.com/</a> <a href="http://www.neoteny.org/" rel="nofollow">http://www.neoteny.org/</a> <a href="http://sexualselection.org/" rel="nofollow">http://sexualselection.org/</a></p>
<p>4) A Topological Theory of Autism by Gregory B. Yates <a href="http://www.autismtheory.org/topotheory.html" rel="nofollow">http://www.autismtheory.org/topotheory.html</a></p>
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		<title>By: Adrian</title>
		<link>http://www.journeyswithautism.com/2009/06/02/intense-world-syndrome/comment-page-1/#comment-80235</link>
		<dc:creator>Adrian</dc:creator>
		<pubDate>Tue, 08 Jun 2010 09:29:10 +0000</pubDate>
		<guid isPermaLink="false">http://www.aspergerjourneys.com/?p=2566#comment-80235</guid>
		<description>Thanks to Rachel&#039;s vector to this article, my search for explanations has finally produced something that makes sense to me. After struggling (for more than four decades) to understand how everyone else copes with the world around them, it has slowly dawned on me that the challenge is far from equal. How on Earth is one supposed to know what&#039;s expected (normal) in terms of emotional response beyond the default assumption that everyone&#039;s the same? A stimulus/response test would easily nail this - if only I could be coaxed into watching a dramatic movie while connected to a polygraph an objective measure could be obtained. But too much choking on the lump in my throat while stifling the tears elicited by something as tame as an afternoon TV show for children has all but stopped me exposing myself to such ordeals.

Now I can restore ASD to the list of suspects after misguidedly ruling it out on the grounds of its supposed attenuation of empathy. Self-diagnosis appears to be the only option for ASD under the NHS.</description>
		<content:encoded><![CDATA[<p>Thanks to Rachel&#8217;s vector to this article, my search for explanations has finally produced something that makes sense to me. After struggling (for more than four decades) to understand how everyone else copes with the world around them, it has slowly dawned on me that the challenge is far from equal. How on Earth is one supposed to know what&#8217;s expected (normal) in terms of emotional response beyond the default assumption that everyone&#8217;s the same? A stimulus/response test would easily nail this &#8211; if only I could be coaxed into watching a dramatic movie while connected to a polygraph an objective measure could be obtained. But too much choking on the lump in my throat while stifling the tears elicited by something as tame as an afternoon TV show for children has all but stopped me exposing myself to such ordeals.</p>
<p>Now I can restore ASD to the list of suspects after misguidedly ruling it out on the grounds of its supposed attenuation of empathy. Self-diagnosis appears to be the only option for ASD under the NHS.</p>
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		<title>By: Phin</title>
		<link>http://www.journeyswithautism.com/2009/06/02/intense-world-syndrome/comment-page-1/#comment-79756</link>
		<dc:creator>Phin</dc:creator>
		<pubDate>Sun, 30 May 2010 11:13:26 +0000</pubDate>
		<guid isPermaLink="false">http://www.aspergerjourneys.com/?p=2566#comment-79756</guid>
		<description>Isn&#039;t this great? To have someone out there recognize that we not only have feelings but INTENSE feelings! I&#039;ve always known that I felt &quot;too much&quot;. Long, long before I was told I had a secure place on the autistic spectrum (late, very late, and I could not accept that I had NO empathy - I look around at my family, and I may be autistic, but sometimes I think I&#039;m the only one who ever really felt anything for anyone else and certainly the only one who was there for them when things fell apart...)

I do not know if its devastating (for many it may be), but it&#039;s sure not easy to be hypersensitive or autistic or whatever you want to call it. And it&#039;s even harder when people take your withdrawal (which is for pure survival) for all the wrong reasons.</description>
		<content:encoded><![CDATA[<p>Isn&#8217;t this great? To have someone out there recognize that we not only have feelings but INTENSE feelings! I&#8217;ve always known that I felt &#8220;too much&#8221;. Long, long before I was told I had a secure place on the autistic spectrum (late, very late, and I could not accept that I had NO empathy &#8211; I look around at my family, and I may be autistic, but sometimes I think I&#8217;m the only one who ever really felt anything for anyone else and certainly the only one who was there for them when things fell apart&#8230;)</p>
<p>I do not know if its devastating (for many it may be), but it&#8217;s sure not easy to be hypersensitive or autistic or whatever you want to call it. And it&#8217;s even harder when people take your withdrawal (which is for pure survival) for all the wrong reasons.</p>
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		<title>By: Rachel Cohen-Rottenberg</title>
		<link>http://www.journeyswithautism.com/2009/06/02/intense-world-syndrome/comment-page-1/#comment-78059</link>
		<dc:creator>Rachel Cohen-Rottenberg</dc:creator>
		<pubDate>Fri, 23 Apr 2010 14:04:23 +0000</pubDate>
		<guid isPermaLink="false">http://www.aspergerjourneys.com/?p=2566#comment-78059</guid>
		<description>Sandrine,

Excellent rant. Wow. You said it all so well, and with just the right amount of outrage. :-)</description>
		<content:encoded><![CDATA[<p>Sandrine,</p>
<p>Excellent rant. Wow. You said it all so well, and with just the right amount of outrage. <img src='http://www.journeyswithautism.com/wp-includes/images/smilies/icon_smile.gif' alt=':-)' class='wp-smiley' /> </p>
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		<title>By: Sandrine</title>
		<link>http://www.journeyswithautism.com/2009/06/02/intense-world-syndrome/comment-page-1/#comment-78057</link>
		<dc:creator>Sandrine</dc:creator>
		<pubDate>Fri, 23 Apr 2010 13:42:57 +0000</pubDate>
		<guid isPermaLink="false">http://www.aspergerjourneys.com/?p=2566#comment-78057</guid>
		<description>Hi Rachel

I&#039;ve just published a rant on my blog largely inspired by this post (and my bad temper...). I haven&#039;t figured out how do &#039;backlinks&#039; yet (I think that&#039;s what they&#039;re called) and wanted to let you know you&#039;d been referred to. Here&#039;s the link: http://paris-ankara.blogspot.com/2010/04/boys-will-be-boys-will-be-autistic-my.html
Needless to say, I&#039;d much value your feedback!</description>
		<content:encoded><![CDATA[<p>Hi Rachel</p>
<p>I&#8217;ve just published a rant on my blog largely inspired by this post (and my bad temper&#8230;). I haven&#8217;t figured out how do &#8216;backlinks&#8217; yet (I think that&#8217;s what they&#8217;re called) and wanted to let you know you&#8217;d been referred to. Here&#8217;s the link: <a href="http://paris-ankara.blogspot.com/2010/04/boys-will-be-boys-will-be-autistic-my.html" rel="nofollow">http://paris-ankara.blogspot.com/2010/04/boys-will-be-boys-will-be-autistic-my.html</a><br />
Needless to say, I&#8217;d much value your feedback!</p>
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		<title>By: eriktrips</title>
		<link>http://www.journeyswithautism.com/2009/06/02/intense-world-syndrome/comment-page-1/#comment-75524</link>
		<dc:creator>eriktrips</dc:creator>
		<pubDate>Sun, 21 Feb 2010 02:00:15 +0000</pubDate>
		<guid isPermaLink="false">http://www.aspergerjourneys.com/?p=2566#comment-75524</guid>
		<description>I have been researching my way around the internet for a couple of years now, looking for information that could help me to discover whether I would be considered on the spectrum or not. Professional assessment of adults in this part of the US starts at about $1500, which is $3500 more than I have! I am applying for disability under a large stack of other psychiatric diagnoses, but so much would be explained by the Intense World Theory of autism, including my severe reactions to childhood trauma (that is, traumatic events that were worse than the everyday trauma I experienced and still experience just being in the world), that I am really glad that you&#039;ve done this bit of research for me! :) 

I have seen bits and pieces of this theory floating around the autist blogosphere for many months, but this is the first research article I have seen that takes a scientific approach to the idea--whatever that is worth; I know opinions on science vary, especially on NT approaches to science. I can&#039;t find any better description of my fear responses that I apparently started to exhibit in infancy in reaction to any but a very narrow set of stimuli, as well as my rather deep attachment to the intensity of my sensory and emotional experiences right up to the point where they pass the limit into pain. Sometimes I can stay with them a little beyond, sort of surfing an intense pleasure/pain circuit, but there is still a limit beyond which I cannot function.

Sociability is so fraught with emotional traps and overloaded with symbolic meaning that I feel paranoid sometimes, as though I am purposefully, or rather obsessively, reading too much into things when I have a personal stake in what they &quot;really&quot; mean, while remaining completely obtuse to those interactions that hold no consequences for me that I know of.

I still am not sure whether I seem like I am on the spectrum because I have become very sensitive to stimuli as a PTSD reaction or whether my PTSD reactions are so severe because I am hypersensitive to stimuli and therefore more easily and more deeply traumatized than another may have been in my place. I tend to think the latter when I recall stories my mother told about my behavior as a very young child, before the really major traumas occurred. Not that minor ones didn&#039;t occur everyday--they did.

Anyway. Thought I&#039;d share what this post brought up for me. I will go and read the article now. I&#039;ll just bleep out the more ridiculous remarks. Thanks for posting this.</description>
		<content:encoded><![CDATA[<p>I have been researching my way around the internet for a couple of years now, looking for information that could help me to discover whether I would be considered on the spectrum or not. Professional assessment of adults in this part of the US starts at about $1500, which is $3500 more than I have! I am applying for disability under a large stack of other psychiatric diagnoses, but so much would be explained by the Intense World Theory of autism, including my severe reactions to childhood trauma (that is, traumatic events that were worse than the everyday trauma I experienced and still experience just being in the world), that I am really glad that you&#8217;ve done this bit of research for me! <img src='http://www.journeyswithautism.com/wp-includes/images/smilies/icon_smile.gif' alt=':)' class='wp-smiley' />  </p>
<p>I have seen bits and pieces of this theory floating around the autist blogosphere for many months, but this is the first research article I have seen that takes a scientific approach to the idea&#8211;whatever that is worth; I know opinions on science vary, especially on NT approaches to science. I can&#8217;t find any better description of my fear responses that I apparently started to exhibit in infancy in reaction to any but a very narrow set of stimuli, as well as my rather deep attachment to the intensity of my sensory and emotional experiences right up to the point where they pass the limit into pain. Sometimes I can stay with them a little beyond, sort of surfing an intense pleasure/pain circuit, but there is still a limit beyond which I cannot function.</p>
<p>Sociability is so fraught with emotional traps and overloaded with symbolic meaning that I feel paranoid sometimes, as though I am purposefully, or rather obsessively, reading too much into things when I have a personal stake in what they &#8220;really&#8221; mean, while remaining completely obtuse to those interactions that hold no consequences for me that I know of.</p>
<p>I still am not sure whether I seem like I am on the spectrum because I have become very sensitive to stimuli as a PTSD reaction or whether my PTSD reactions are so severe because I am hypersensitive to stimuli and therefore more easily and more deeply traumatized than another may have been in my place. I tend to think the latter when I recall stories my mother told about my behavior as a very young child, before the really major traumas occurred. Not that minor ones didn&#8217;t occur everyday&#8211;they did.</p>
<p>Anyway. Thought I&#8217;d share what this post brought up for me. I will go and read the article now. I&#8217;ll just bleep out the more ridiculous remarks. Thanks for posting this.</p>
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		<title>By: Zhekai</title>
		<link>http://www.journeyswithautism.com/2009/06/02/intense-world-syndrome/comment-page-1/#comment-74374</link>
		<dc:creator>Zhekai</dc:creator>
		<pubDate>Thu, 28 Jan 2010 07:38:50 +0000</pubDate>
		<guid isPermaLink="false">http://www.aspergerjourneys.com/?p=2566#comment-74374</guid>
		<description>Excellent!
I&#039;d read something similar in a book about neuroplasticity just recently...the idea that autistic people somehow miss the period in early infancy where neural pathways are usually &#039;pruned back&#039; to distinguish important stimuli from unimportant.
Hence, every time the autistic/aspie hears a sound, the *whole* auditory cortex activates, rather than just the specific pathways for that kind of sound.

Your description sounds even better - hyper intensity - makes a lot of sense, especially in the emotional realm, where the accepted &#039;wisdom&#039; is so firmly on the hypo-emotional side of things.

In general, this theory meshes nicely with my experience of engaging with typical people and scenarios, whereby going too fast is just as out-of-sync as going too slow.</description>
		<content:encoded><![CDATA[<p>Excellent!<br />
I&#8217;d read something similar in a book about neuroplasticity just recently&#8230;the idea that autistic people somehow miss the period in early infancy where neural pathways are usually &#8216;pruned back&#8217; to distinguish important stimuli from unimportant.<br />
Hence, every time the autistic/aspie hears a sound, the *whole* auditory cortex activates, rather than just the specific pathways for that kind of sound.</p>
<p>Your description sounds even better &#8211; hyper intensity &#8211; makes a lot of sense, especially in the emotional realm, where the accepted &#8216;wisdom&#8217; is so firmly on the hypo-emotional side of things.</p>
<p>In general, this theory meshes nicely with my experience of engaging with typical people and scenarios, whereby going too fast is just as out-of-sync as going too slow.</p>
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		<title>By: Rachel</title>
		<link>http://www.journeyswithautism.com/2009/06/02/intense-world-syndrome/comment-page-1/#comment-73778</link>
		<dc:creator>Rachel</dc:creator>
		<pubDate>Sat, 16 Jan 2010 00:13:09 +0000</pubDate>
		<guid isPermaLink="false">http://www.aspergerjourneys.com/?p=2566#comment-73778</guid>
		<description>Hi bluedancer,

Thanks for your comment, and welcome!

P.S. Your avatar is amazing! :-)</description>
		<content:encoded><![CDATA[<p>Hi bluedancer,</p>
<p>Thanks for your comment, and welcome!</p>
<p>P.S. Your avatar is amazing! <img src='http://www.journeyswithautism.com/wp-includes/images/smilies/icon_smile.gif' alt=':-)' class='wp-smiley' /> </p>
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		<title>By: bluedancer</title>
		<link>http://www.journeyswithautism.com/2009/06/02/intense-world-syndrome/comment-page-1/#comment-73772</link>
		<dc:creator>bluedancer</dc:creator>
		<pubDate>Fri, 15 Jan 2010 22:37:21 +0000</pubDate>
		<guid isPermaLink="false">http://www.aspergerjourneys.com/?p=2566#comment-73772</guid>
		<description>hi---i&#039;ve read some of your blog, have always enjoyed it and usually find something to relate to.  (i just haven&#039;t posted until now.)  

this is fascinating, and it is very validating.  it&#039;s almost amusing to me that most current theories have those with AS (or NLD&#039;s) &quot;under-stimulated&quot; or &quot;hypo-functioning&quot; in some areas of the brain.  the amygdala?  hypo-functioning?  as if i just don&#039;t make much eye contact because---oh well---haven&#039;t gotten around to it yet, or just don&#039;t care to.  (no.  it&#039;s anxiety-provoking!  and i agree: they could just talk to someone, and get the same info.)

again---it gives words to things that have had some intuitive meaning to me, but which i just couldn&#039;t really articulate (not having the science, and all.)  thank you for posting this.</description>
		<content:encoded><![CDATA[<p>hi&#8212;i&#8217;ve read some of your blog, have always enjoyed it and usually find something to relate to.  (i just haven&#8217;t posted until now.)  </p>
<p>this is fascinating, and it is very validating.  it&#8217;s almost amusing to me that most current theories have those with AS (or NLD&#8217;s) &#8220;under-stimulated&#8221; or &#8220;hypo-functioning&#8221; in some areas of the brain.  the amygdala?  hypo-functioning?  as if i just don&#8217;t make much eye contact because&#8212;oh well&#8212;haven&#8217;t gotten around to it yet, or just don&#8217;t care to.  (no.  it&#8217;s anxiety-provoking!  and i agree: they could just talk to someone, and get the same info.)</p>
<p>again&#8212;it gives words to things that have had some intuitive meaning to me, but which i just couldn&#8217;t really articulate (not having the science, and all.)  thank you for posting this.</p>
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		<title>By: Svetla</title>
		<link>http://www.journeyswithautism.com/2009/06/02/intense-world-syndrome/comment-page-1/#comment-65993</link>
		<dc:creator>Svetla</dc:creator>
		<pubDate>Mon, 14 Sep 2009 20:28:08 +0000</pubDate>
		<guid isPermaLink="false">http://www.aspergerjourneys.com/?p=2566#comment-65993</guid>
		<description>This last line?---

Far from considering autistic people as incomplete individuals with missing pieces, the authors conclude that “the autistic person is an individual with remarkable and far above average capabilities due to greatly enhanced perception, attention and memory. In fact, it is this hyper-functionality which could render the individual debilitated.”

---...made me just burst into tears.

(Not joking in the least.)

This is EXACTLY why I had to drop out of college for a year &amp; a half [&amp; countingrrrrrgh]---in spite of being the most goddamn devoted &amp; prolific student in the whole damned college.

I don&#039;t, uh...&quot;do&quot; moderation. My mother says I&#039;ll crash &amp; burn, be a bum on the streets---if I don&#039;t learn how to compromise my sense of integrity with real world expectations &amp; deadlines &amp;---

I just want to shriek &amp; kick something HARD whenever anybody tells me that functioning at a much lower level should be &quot;a cakewalk for a brilliant kid&quot; like me!

Know my mom&#039;s favourite thing to opine? &quot;You&#039;d be so perfect---the world would be soooo much easier...!---if only we could find that &#039;off&#039; switch!&quot;

UGH!</description>
		<content:encoded><![CDATA[<p>This last line?&#8212;</p>
<p>Far from considering autistic people as incomplete individuals with missing pieces, the authors conclude that “the autistic person is an individual with remarkable and far above average capabilities due to greatly enhanced perception, attention and memory. In fact, it is this hyper-functionality which could render the individual debilitated.”</p>
<p>&#8212;&#8230;made me just burst into tears.</p>
<p>(Not joking in the least.)</p>
<p>This is EXACTLY why I had to drop out of college for a year &amp; a half [&amp; countingrrrrrgh]&#8212;in spite of being the most goddamn devoted &amp; prolific student in the whole damned college.</p>
<p>I don&#8217;t, uh&#8230;&#8221;do&#8221; moderation. My mother says I&#8217;ll crash &amp; burn, be a bum on the streets&#8212;if I don&#8217;t learn how to compromise my sense of integrity with real world expectations &amp; deadlines &amp;&#8212;</p>
<p>I just want to shriek &amp; kick something HARD whenever anybody tells me that functioning at a much lower level should be &#8220;a cakewalk for a brilliant kid&#8221; like me!</p>
<p>Know my mom&#8217;s favourite thing to opine? &#8220;You&#8217;d be so perfect&#8212;the world would be soooo much easier&#8230;!&#8212;if only we could find that &#8216;off&#8217; switch!&#8221;</p>
<p>UGH!</p>
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