Comments on: The Waiting Game: A Conversation with My Nervous System http://www.journeyswithautism.com/2009/06/16/waiting/ Ethics, Disability Rights, and Reports from Life on the Spectrum Tue, 07 Feb 2012 01:06:57 +0000 hourly 1 http://wordpress.org/?v=3.3.1 By: Fantomeq http://www.journeyswithautism.com/2009/06/16/waiting/comment-page-1/#comment-208429 Fantomeq Wed, 04 Jan 2012 02:31:41 +0000 http://www.aspergerjourneys.com/?p=2711#comment-208429 Visual schedules with little picture icons (eat, exercise, shower, etc) work wonders with autistic kids, so it might be worth a try for adults too. Make up some icons with notes of how long certain things take next to it. I do the same panic thing too, and it usually screws up my digestive tract. I've had some luck with 5-HTP and Valerian to take my anxiety down to a managable level. Because I tried everything else and have a billion things to do in order to take care of my little ones. Visual schedules with little picture icons (eat, exercise, shower, etc) work wonders with autistic kids, so it might be worth a try for adults too. Make up some icons with notes of how long certain things take next to it.

I do the same panic thing too, and it usually screws up my digestive tract. I’ve had some luck with 5-HTP and Valerian to take my anxiety down to a managable level. Because I tried everything else and have a billion things to do in order to take care of my little ones.

]]> By: Taylor Selseth http://www.journeyswithautism.com/2009/06/16/waiting/comment-page-1/#comment-68971 Taylor Selseth Tue, 27 Oct 2009 03:33:09 +0000 http://www.aspergerjourneys.com/?p=2711#comment-68971 OMG, that could have been me after my routine gets disturbed, usually because of an appointment or a family thing that pops up. OMG, that could have been me after my routine gets disturbed, usually because of an appointment or a family thing that pops up.

]]> By: Rachel http://www.journeyswithautism.com/2009/06/16/waiting/comment-page-1/#comment-63012 Rachel Fri, 10 Jul 2009 20:53:45 +0000 http://www.aspergerjourneys.com/?p=2711#comment-63012 Hi Craig, So glad the piece resonated with you! You have a great strategy for dealing with this kind of situation. Hi Craig,

So glad the piece resonated with you! You have a great strategy for dealing with this kind of situation.

]]> By: Craig Liley http://www.journeyswithautism.com/2009/06/16/waiting/comment-page-1/#comment-63011 Craig Liley Fri, 10 Jul 2009 20:27:32 +0000 http://www.aspergerjourneys.com/?p=2711#comment-63011 Oh, wow! This fits me to a T. This is why, even though my work schedule varies day to day, sometimes by 12 hours, I ALWAYS try to time going to sleep so that I wake up no more than 2 hours before I have to leave. This gives me just enough time to go through my "morning" routine of getting up and getting ready without leaving time to think about actually having to go to work and deal with everything and everybody there. Oh, wow! This fits me to a T. This is why, even though my work schedule varies day to day, sometimes by 12 hours, I ALWAYS try to time going to sleep so that I wake up no more than 2 hours before I have to leave. This gives me just enough time to go through my “morning” routine of getting up and getting ready without leaving time to think about actually having to go to work and deal with everything and everybody there.

]]> By: LizzieK8 http://www.journeyswithautism.com/2009/06/16/waiting/comment-page-1/#comment-61119 LizzieK8 Thu, 18 Jun 2009 12:50:34 +0000 http://www.aspergerjourneys.com/?p=2711#comment-61119 You do have an amazing knack for cutting it all right down to the quick. Great job on what it's like to live in our world in the afternoons! You do have an amazing knack for cutting it all right down to the quick. Great job on what it’s like to live in our world in the afternoons!

]]> By: John Dale Lyons http://www.journeyswithautism.com/2009/06/16/waiting/comment-page-1/#comment-60570 John Dale Lyons Wed, 17 Jun 2009 15:49:35 +0000 http://www.aspergerjourneys.com/?p=2711#comment-60570 Apologies to Tom Petty: Oh brain don't it feel too heavy right now Don't it feel like the time will never come Yeah I've only known it just like this Don't it feel like acting "normal" again We know better than to try and pretend Brain no one could have ever told me 'bout this chorus The waiting is the hardest part Every day is like the same retort You wanna be accepted, you take it to the heart The waiting is the hardest part Well yeah I might have tried too hard to fit it All it ever got me was down Then there were some that made me feel good But not as understood as I feel right now Brain, you're the only one that's ever known how To make me wanna live like an Aspie right now chorus Don't let it kill you, brain, don't let it get to you Don't let 'em kill you, brain, don't let 'em get to you I'll be your therapist, I'll be your advocate Don't let this go to far, don't let it get to you chorus Apologies to Tom Petty:

Oh brain don’t it feel too heavy right now
Don’t it feel like the time will never come
Yeah I’ve only known it just like this
Don’t it feel like acting “normal” again
We know better than to try and pretend
Brain no one could have ever told me ’bout this

chorus
The waiting is the hardest part
Every day is like the same retort
You wanna be accepted, you take it to the heart
The waiting is the hardest part

Well yeah I might have tried too hard to fit it
All it ever got me was down
Then there were some that made me feel good
But not as understood as I feel right now
Brain, you’re the only one that’s ever known how
To make me wanna live like an Aspie right now

chorus

Don’t let it kill you, brain, don’t let it get to you
Don’t let ‘em kill you, brain, don’t let ‘em get to you
I’ll be your therapist, I’ll be your advocate
Don’t let this go to far, don’t let it get to you

chorus

]]> By: Kate http://www.journeyswithautism.com/2009/06/16/waiting/comment-page-1/#comment-60411 Kate Wed, 17 Jun 2009 09:39:01 +0000 http://www.aspergerjourneys.com/?p=2711#comment-60411 wow that was great! I like later aftternoon appts tho. I am totally not functional until late in the day. Id rather have an appt late in the day and less of the day left to react to how horrible it was then have it first thing in the day and ruin the entire day so I obsess about how horrible it was all day lol we're all different Kate wow that was great!
I like later aftternoon appts tho. I am totally not functional until late in the day. Id rather have an appt late in the day and less of the day left to react to how horrible it was then have it first thing in the day and ruin the entire day so I obsess about how horrible it was all day
lol
we’re all different
Kate

]]> By: Quirky Mom http://www.journeyswithautism.com/2009/06/16/waiting/comment-page-1/#comment-60276 Quirky Mom Wed, 17 Jun 2009 04:08:14 +0000 http://www.aspergerjourneys.com/?p=2711#comment-60276 Me too!!! Thanks for putting my life in words, once again. :) Me too!!!

Thanks for putting my life in words, once again. :)

]]> By: Ben http://www.journeyswithautism.com/2009/06/16/waiting/comment-page-1/#comment-60212 Ben Wed, 17 Jun 2009 01:34:07 +0000 http://www.aspergerjourneys.com/?p=2711#comment-60212 that was me! i don't think i could have that cogent a conversation with my nervous system, but i do get the same concerns sometimes, especially giving myself a hard time. most of the time, i find myself anticipating the disapproval of other people, and so want to get there first. i don't really expect regular people to understand or sympathize with my particular difficulties. but i take every chance i get to show off my super powers, like my super-observation, super-smelling or super-sense of touch. that was me!
i don’t think i could have that cogent a conversation with my nervous system, but i do get the same concerns sometimes, especially giving myself a hard time. most of the time, i find myself anticipating the disapproval of other people, and so want to get there first. i don’t really expect regular people to understand or sympathize with my particular difficulties. but i take every chance i get to show off my super powers, like my super-observation, super-smelling or super-sense of touch.

]]> By: Jennifer http://www.journeyswithautism.com/2009/06/16/waiting/comment-page-1/#comment-60110 Jennifer Tue, 16 Jun 2009 21:27:06 +0000 http://www.aspergerjourneys.com/?p=2711#comment-60110 My daughter, today, got anxious about going somewhere where she had "one" (the last time we went) bad experience. I hadn't realised that we would have that problem, and that she would be filled with dread. We had to explain that the conditions should be different tomorrow, and that in any case, we were going to take her feelings into account and do our best to make the situation tomorrow bearable, and then she calmed down. I'm really glad that I took her feelings seriously and didn't belittle her reactions. Your blog entries have made it possible, that I can relate to her better. Thanks! My daughter, today, got anxious about going somewhere where she had “one” (the last time we went) bad experience. I hadn’t realised that we would have that problem, and that she would be filled with dread.

We had to explain that the conditions should be different tomorrow, and that in any case, we were going to take her feelings into account and do our best to make the situation tomorrow bearable, and then she calmed down.

I’m really glad that I took her feelings seriously and didn’t belittle her reactions. Your blog entries have made it possible, that I can relate to her better.
Thanks!

]]>