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Jun18
When Will I Ever Learn?
11 CommentsLast night, I did something that I should have known wouldn’t work. But because I’m still winding down from trying to impersonate an NT, I did it anyway. And today, I’m a bit of a wreck.
Do you want to know what I did? It will knock your socks off. Really. You’d better be sitting down for this one. I’m serious. If you fall over and bump your head on the floor, it’s not my problem.
Here’s what I did: I went out for dinner with my husband, my daughter, and one of her best friends.
That’s all. Really. There’s no more to it. The part of my brain that still thinks I’m neuro-typical says, “That’s all? That’s a mistake? What the hell is your problem?”
Fortunately, a great deal more of my brain understands that I’m autistic. Those parts of my brain are all acting in unison, saying, “Try and explain to the nice people who read your blog why going out for dinner with three other people was a serious lapse in judgment.” So I will.
Here’s how it went: I spent the day gardening yesterday, and I felt great. About 5:00 pm or so, my husband said, “Do you want to take the kids down the street and get some Thai food?”
I simultaneously thought, “No!” and “Yeah, that’d be great!” The reason it felt so great is that we all love Thai food, the restaurant is a short walk from our house, the people who run it are incredibly friendly, and the last time we went, they made special provisions for my inability to deal with lots of noise.
The last time, it was just Bob and me, and the place was very crowded. There were several small, adorable children, making several loud, repetitive, adorable, childlike noises, and after sitting at the table for a minute or so, I realized that I’d never make it through dinner in one piece. There is a quieter part of the restaurant, and Bob asked whether we might sit there. The response was that they don’t usually open up that space for dinner, but they understood that I couldn’t enjoy my meal otherwise, and they were gracious enough to seat us well away from the noise. We ended up having a very good time there, and we thanked them profusely for being flexible.
Yesterday, this lovely experience was in my mind when I said, “Yeah, that’d be great!” I figured that if things were noisy, we could just sit in a quieter part of the restaurant. I forgot about the part where sitting and talking with more than one person at a time is impossibly difficult.
Sitting with Bob is simple. It’s very little work. Sitting with Bob and Ashlynne is a bit harder, but because I know them well, and they respond to my need to slow a conversation down, it’s quite doable. Sitting with Bob and Ashlynne and her friend (who is a regular and welcome visitor to our house) is exponentially harder. And did I mention that Ashlynne and her friend are teenagers, and that like many neuro-typical teenagers, they talk very, very fast? Consider it mentioned.
So there we were, sitting at the table, and very quickly, I began to feel like the boring autistic person in the group. Everyone else was bright and chipper, and I was feeling like a dud because I couldn’t keep up. At that moment, it did cross my mind to leave, but that’s when the habit of pretending to be neuro-typical kicked in. And such a bad habit it is, too.
So, I stayed for the entire dinner. I tried to keep up. I asked questions. I made jokes. I responded to the things that other people said. And I tried very hard to mask the fact that I was getting disoriented and exhausted. Of course, I was keenly aware of what a strain it was. I was conscious that I was dissembling, and that my face was not reflecting the enervating effect of every word that was coming out of my mouth. The whole experience was very familiar, especially the part when the migraine started coming on. Somehow, the familiarity of the strain I was under made it that much harder to detach from the situation and get out of there.
And I really wanted to be there. I enjoy Ashlynne and her friend, and it was fun to watch them have a good time together. And yeah, okay, I didn’t leave because, goddammit, why should I? Why should I have to leave when everyone else is having so much fun?
When the girls finished their meals, they decided to go, so Bob and I got to sit alone for a little while. By that point, I was pretty much down for the count. As we were walking home, I told Bob that the whole thing was very, very hard for me, and that I probably shouldn’t try it again. It was difficult for me to translate the experience for him, so I finally said, “Suppose you had to get some cans down from a very high shelf, and that the best you could do for an entire hour was to jump, and never quiet make it, over and over and over, except that every now and then, you actually touch one of the cans, which makes you want to jump and try it again. That’s how it feels.”
He nearly shivered at the thought, and we talked a bit about the difficulties of autistic-to-neuro-typical translation. When we got home, I realized that it would really help me to show him Amanda Baggs’ In My Language video and look at her blog with him. And it did help. I wanted him to have more of a sense of the dissonance between how a person seems on the outside and what’s really going on inside. He was very taken with everything I showed him. He’s always been supportive, but her blog helped him understand more about how I work and how I feel.
So that was a very good outcome of the whole disaster.
Today, however, I’m paying for it. My bladder hurts. My neck aches. And despite having slept in for half the morning, I’m physically and emotionally exhausted. Fortunately, I can still write. Later on, I’ll get under my weighted blankets and rest.
© 2009 by Rachel Cohen-Rottenberg
11 Responses to “When Will I Ever Learn?”
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The moment I read that you had dinner with multiple people, out, I felt tense myself. I completely understand. The number of people is overwhelming by itself, but then, so is the atmosphere of a never-quiet restaurant. Throw in the social aspects of Bob’s daughter, and her friend, and wow, I think I’d feel like someone rang me like a bell.
I love how you described this experience in metaphor, I use metaphor a lot to help me convey what I am feeling. Simple words often escape me.
Sounds like weighted blanket time for sure!
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That is an amazing, amazing analogy and I know exactly how you feel.
I want to use that analogy with other people. Wow. Thank you for being so insightful and sharing with us. -
Thanks for mentioning the physical pain. Puts a whole new light on the illness that overtook me when I worked with other people. I hope some day soon I’ll have the insurance to see the doc who can write me a nice note saying I’m “officially weird” and should stay away from social situations as much as I desire. Until then, I’ll keep coming back here to reassure myself that I’m not alone.
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Jennifer Gardner June 19th, 2009 at 10:10 am
I love your analogies. My husband is great with them and can quickly give me a very clear perspective. If Jason has any hint of fogginess we avoid restaurants. I can see him cringe.
There is a restaurant that we visit and they always try to seat us in a specific corner that Jason says echo’s the sounds of the entire restaurant. It seems perfectly “normal” to me but I have the ability to filter.
By the way, we looooooove Thai food. -
It’s always amazing how we trick ourselves into thinking “this time it will be different.”
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i went out to a once a year art opening of my new gallery two weeks ago. I went out for dinner to a quiet place, wtih my son’s dad, my son and an artist friend who is highly attuend to ASD’s as his nephew is an AS adult.
th evening was overwhelming, exhausting, necessary for my career, terribly difficult. the next day was spent at hom alone in my room, wtih a meltdown, a headache and the usual post stimulus need for quiet, recuperation and routine and peace.I relate, rachel!
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This gives me tremendous insight into what my son, NJ, might be dealing with when we go out to dinner at our local Thai place! Maybe next time, I will take him outside for a walk to have a breather when he gets going. Thanks for the post.
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Craig Liley July 11th, 2009 at 3:36 pm
This helped give me some new insight on why Susanne often hates to go out to eat. I enjoy restaurants if it’s somewhere I’ve been before, not too bright, not crowded, Susanne is with me, and there hasn’t been much else going on that day. Susanne, on the other hand, can’t be dragged into one. I know part of it always had to do with her fear of not finding anything to eat on the menu (she is vegan), but a lot of this post really helps explain a lot of the other parts of her reactions I never quite understood.
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Hi Craig,
I’m glad to have shed some light on the subject. It’s amazing how many challenges we can take for granted our whole lives, without ever defining them or even seeing them as challenges. Knowing what works and what doesn’t work makes informed choices possible. Sometimes, it feels like a bit of a miracle to have stumbled upon this information in the middle of my life.
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No problem! A walk is always a good idea, no matter what the difficulty.
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Taylor Selseth October 26th, 2009 at 11:51 pm
What an interesting contrast with myself, I greatly enjoy eating out as long as the place isn’t super-crowded. The exception being a few restaurants that ALWAYS seem to trigger me. Whether it’s the smells, lighting, the way sounds behave in the building, or the decor I don’t know.




