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Aug6
Now I Know Why My Grandmother Avoided Doctors
8 CommentsI was going to write a post about my time at the thrift store today, but then I came home to a wonderful little packet of papers scheduling various medical tests that I may or may not need. The result of receiving said wonderful little packet of papers is that I’m stressed out, pissed off, upset, and generally in a bad mood.
The backstory: I had a physical about a month or so ago, at which time I got a baseline EKG. About a week or two later, I got a phone message from the doctor, saying that there was a “slight abnormality” on the EKG called an “ST depression.” She said that I should have an echocardiogram (basically, an ultrasound for the heart) and a cardio-stress test. Fool that I am, I called back and told them to schedule the tests. Three weeks later (today), I got my lovely little packet of papers.
The echocardiogram is no big deal—that is, compared to the stress test, which is an autistic’s nightmare. It entails going to the hospital for three to five hours (or, if I can’t stand that, I can stretch out the ordeal over two visits of two hours each). During this time, they will inject me with a radioactive tracer. Twice. Through an IV. Doesn’t that sound like fun? The rest of the time I’ll be walking/running on a treadmill, recovering from walking/running on a treadmill, or staying very, very still for 18-22 minutes while they do the imaging. Twice.
So, good little Aspie that I am, I slowly but surely panicked. Then, I went online and started looking up information in, shall we say, a somewhat hyper-focused, perseverating, leave-me-the-hell-alone kind of way? Of course, I started out by finding all kinds of scary information about heart disease. Then, I started to feel slightly better when they described what to do in order to decrease your risk of heart disease, like decreasing salt and not eating so much red meat. Hello? I don’t buy anything with salt added, I don’t eat red meat, I exercise daily, I don’t smoke, I don’t drink alcohol, and I eat mostly fruits, vegetables, tofu, fish, and chicken. And did I mention that I have low-to-normal blood pressure? And that there is no history of heart disease in my family?
Fending off my growing fear that I might die of a heart attack any second, I kept searching and found out that the ST depression could also be caused by an electrolyte imbalance. Hmmm. I eat lots of bananas (which have potassium), but I may not get enough magnesium. An electrolyte imbalance could definitely be the culprit. Okay, so maybe my arteries aren’t hardening as we speak. I felt relieved. Slightly.
Finally, I found some online articles by actual doctors who said that an ST depression can be completely benign. It can be caused by things like anxiety or panic during the EKG. Wanna know what happened during my EKG? Well, when the talkative nurse was putting all the little patches on me, she was prattling on and on about her autistic son, and how they never, ever, ever use the word “autism” with reference to her son, because that would just make the little guy seem, well…I don’t really know. Autistic? Then, I told her that I’m autistic, too, and then she started prattling on and on about how inspiring I am, and how I give her so much hope for her little guy who they never, ever, ever say is autistic. Can you say major freakin’ sensory overload? Extreme hyper-reactive nervous system response? Fear, anger, anxiety, panic—as though my entire system were saying “Who the f*ck let this woman in here, anyway?”
When the doctor came back in and asked how the EKG felt, I said it was fine, except for the nurse who kept talking.
So, here’s how it looks to me:
Three weeks ago, I got a phone message from the doctor saying that I have a slight abnormality on my baseline EKG. She didn’t ask me to come in for an appointment to discuss the results of the EKG. She didn’t tell me how slight the abnormality is. She didn’t refer me to a cardiologist. She didn’t tell me that it could be a sign of anything dangerous. She didn’t ask me about my diet. She didn’t tell me that I have any risk factors for heart disease. (I don’t.) She just told me that I had to have an echocardiogram and a stress test. I didn’t freak until I got the papers today and realized that they’re going to inject me with radioactive dye and make me hang around other people in a hospital gown for 3-5 hours.
I called the doctor’s office back and left her a message saying that maybe we ought to start with the echocardiogram and see the result before we start with the stress test. A couple of hours later, I started thinking that maybe we should just start with a blood test to check my electrolyte balance. Now, I’m thinking that maybe they should sedate me and give me an EKG in a room in which the nurse is NOT prattling on about her autistic son.
My grandmother never saw a doctor from the day she gave birth to my mother in 1933 until the day she died in 1975. And guess how she died? She went to sleep and never woke up. She was 74, and they don’t even know why she died. There wasn’t a thing wrong with her. It was just her time to go.
Now I understand why she made that choice. I don’t know whether it’s for me, but it sounds more and more appealing all the time.
© 2009 by Rachel Cohen-Rottenberg
8 Responses to “Now I Know Why My Grandmother Avoided Doctors”
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Hi Rachel, I can understand exactly where you’re coming from…
I had chest pains about a month back. I went to see a doctor, luckily I work almost next door to a clinic. They rushed me off to hospital in an ambulance…
Anyway, eventually – after a whole day of tests – they let me go, which was great because I was stressing out with overload simply because they were fussing.
I was told to go and do some further tests, which I did end up doing but haven’t followed up on yet to get results (it’s been a month). The reason; I just don’t think I could stand going through all that fuss again.
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I also avoid doctors like the plague. And dentists. In fact, after my parents stopped making twice-yearly appointments for me, I stopped going to the dentist at all. Eighteen years later, I had my first dentist appointment since childhood. Nothing wrong with my teeth at all. No cavities. Nothing. (According to the dentist, I was in the lucky set of people who avoid dentists for two decades: the other set needs all teeth pulled and replaced with dentures. He said you very rarely see anything in between after so long a dental hiatus.)
My experience with doctors–and I’ve had quite a lot, during my daughter’s illness and my most recent pregnancy, which had a rare complication–is that they often know LESS about the condition in question than I do. Like you, Rachel, I go online and look up medical studies and journal articles and learn a wealth of technical medical information on the condition. Which I then teach to the doctor. At best, they know what I know, and hey, I already know what I need to do, what the prognosis is, what measures to take.
I will not go to the doctor until something hurts. If this means I miss the treatable stage of some kind of cancer, well, so be it.
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Yuppers…. I avoid doctors as much as possible.
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misfit August 7th, 2009 at 8:50 am
yah, i’m fed up with doctors too, but with various chronically painful issues going on, I unfortunately need to see one occsionally. I have self diagnosed in the past when they said it was (a) constipation and (b) all in my head (go figure…) and ended up being something I needed to be in the ER for and spent the next 10 days on a drip in the hospital…!
hope this all gets sorted out and that all is well. -
Thanks for your support, everyone. It’s very affirming to hear that others feel as I do.
I went this morning to get some bloodwork done (as part of my physical), so we’ll see if anything shows up. In any case, Bob and I have an appointment with the doc next Friday to talk all this out.
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I have no luck with doctors either. I tend to get into actual arguments with them over their approaches or diagnoses. I hate that even after I tell them that I’m a biochemist and don’t need the kindergarten explanation for something, they explain things to me as if I’m 6 years old. I can’t stand their habit of making an appointment, making you wait an hour when you get there, and yet they charge you $100 if you show up late. To make it worse, when they finally do see you, they generally spend all of about 30 seconds with you, none of that time involving listening. In fact, the way most doctors are, you are best to talk very quickly through a set of bullet points:
* Cough
* Sneezing
* Runny Nose
- “Oh, and I have this soreness in my left big toe that is bothering me quite badly.”
MD: When here is a list of over the counter cold remedies you should try and I’ve prescribed you an anti-depressant to help you deal with it all. Bye.
Of course, they all but ignore any item that doesn’t fit a packaged diagnosis. Your toe simply isn’t related to the cold and for it, you need to make another appointment, wait another hour, and get another 30 seconds of non-listening time allotted.
And what is up with them handing out anti-depressants like candy? Especially in the states here, it seems like nearly everyone is on some SSRI anti-depressant. That’s not good. These aren’t drugs that improve the quality of life for the vast majority of users. They simply make them numb enough to not care about their poor quality of life. Since the advent of handing SSRIs out to everyone, I’ve noticed (read Aspie fixation) a sharp decline in basic social courtesy behavior. People don’t open doors for others, they don’t say excuse me, they don’t say “please” or “thank you”, and they raise their children “feral” (to quote John). My current theory is that much of this decline in caring is do to people being on drugs that numb them out. If so many people actually need to be on those drugs, it’s a giant wake up signal to a pervading social disease, not individualized cases of depression. Oops, I went tangential there, sorry.
Anyhow….
For a group of professionals that are supposed to be some of our brightest, most caring, and most highly educated, they sure do fail to act with thought, concern, or knowledge. -
Rachel,
Just READING about the chatty nurse doing your EKG made me want to find her and slap her. Just for being obnoxious. LOL
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@Saja
I haven’t been to the dentist in 23 years. And I KNOW my teeth aren’t in good shape.
Uh oh. lol




