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	<title>Comments on: A Letter to My Doctor</title>
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	<link>http://www.journeyswithautism.com/2009/08/11/a-letter-to-my-doctor/</link>
	<description>Reports from Life on the Spectrum</description>
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		<title>By: Rachel</title>
		<link>http://www.journeyswithautism.com/2009/08/11/a-letter-to-my-doctor/comment-page-1/#comment-64391</link>
		<dc:creator>Rachel</dc:creator>
		<pubDate>Wed, 12 Aug 2009 22:36:23 +0000</pubDate>
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		<description>Thanks for all your responses and all your support. I&#039;ll have to look into the &quot;virtual colonoscopy&quot; (okay, bad pun), though I can&#039;t really see having the test when I have no family history of colon cancer. In fact, the only cancer in my family were my mother&#039;s brain tumor and my grandfather&#039;s kidney cancer. Ironically, no doctor has ever pressured me to get yearly MRIs of my brain and kidneys. ;-)</description>
		<content:encoded><![CDATA[<p>Thanks for all your responses and all your support. I&#8217;ll have to look into the &#8220;virtual colonoscopy&#8221; (okay, bad pun), though I can&#8217;t really see having the test when I have no family history of colon cancer. In fact, the only cancer in my family were my mother&#8217;s brain tumor and my grandfather&#8217;s kidney cancer. Ironically, no doctor has ever pressured me to get yearly MRIs of my brain and kidneys. <img src='http://www.journeyswithautism.com/wp-includes/images/smilies/icon_wink.gif' alt=';-)' class='wp-smiley' /> </p>
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		<title>By: John Dale Lyons</title>
		<link>http://www.journeyswithautism.com/2009/08/11/a-letter-to-my-doctor/comment-page-1/#comment-64385</link>
		<dc:creator>John Dale Lyons</dc:creator>
		<pubDate>Wed, 12 Aug 2009 20:34:44 +0000</pubDate>
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		<description>You are a very eloquent advocate for yourself, and Bob is truly a mensch.</description>
		<content:encoded><![CDATA[<p>You are a very eloquent advocate for yourself, and Bob is truly a mensch.</p>
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		<title>By: Belfast</title>
		<link>http://www.journeyswithautism.com/2009/08/11/a-letter-to-my-doctor/comment-page-1/#comment-64381</link>
		<dc:creator>Belfast</dc:creator>
		<pubDate>Wed, 12 Aug 2009 17:49:33 +0000</pubDate>
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		<description>Believe that &quot;virtual colonoscopy&quot; is the new version of the test, though I can&#039;t recall how they acquire the data with which to generate it, something non-invasive.

The letter you wrote is akin to what I would say were I collected (composed, calm) &amp; courageous enough. Minor procedures are anything but. Over a decade ago, I had blood tests done &amp; one result indicated I might have low B12. The follow-up for investigating that was a &quot;Schiller&#039;s test&quot; which meant drinking some bad stuff &amp; being examined, none of which was remotely plausible for me to willingly undergo, so I didn&#039;t follow up-and that was the end of that.

I&#039;ll stipulate that my viewpoint is quite &quot;illogical&quot; and &quot;ill-advised&quot;, nonetheless, my emotional state trumps other levels of concern. My &quot;future-brain&quot; fears debilitation (consequences), but my &quot;present-brain&quot; is utterly unable to tolerate &quot;suffer now &amp; survive later&quot; behaviors. The only medical care I endure are visits to gynecologist &amp; to dentist (and I didn&#039;t go there regularly until after I&#039;d already lost several teeth due to neglect), and even those are torment. 

I&#039;m all in favor of being healthy, however the required actions are beyond my reach/range. Part of me feels like I survive based on the placebo effect, and were I to see a dr. for a physical, I&#039;d collapse on the spot like an exorcised ghost, once I&#039;d been told that my various systems were failing. My obsessive &amp; pessimistic mind makes it hard enough for me to function with the current problems of which I&#039;m aware &amp; I don&#039;t feel I can handle any more.</description>
		<content:encoded><![CDATA[<p>Believe that &#8220;virtual colonoscopy&#8221; is the new version of the test, though I can&#8217;t recall how they acquire the data with which to generate it, something non-invasive.</p>
<p>The letter you wrote is akin to what I would say were I collected (composed, calm) &amp; courageous enough. Minor procedures are anything but. Over a decade ago, I had blood tests done &amp; one result indicated I might have low B12. The follow-up for investigating that was a &#8220;Schiller&#8217;s test&#8221; which meant drinking some bad stuff &amp; being examined, none of which was remotely plausible for me to willingly undergo, so I didn&#8217;t follow up-and that was the end of that.</p>
<p>I&#8217;ll stipulate that my viewpoint is quite &#8220;illogical&#8221; and &#8220;ill-advised&#8221;, nonetheless, my emotional state trumps other levels of concern. My &#8220;future-brain&#8221; fears debilitation (consequences), but my &#8220;present-brain&#8221; is utterly unable to tolerate &#8220;suffer now &amp; survive later&#8221; behaviors. The only medical care I endure are visits to gynecologist &amp; to dentist (and I didn&#8217;t go there regularly until after I&#8217;d already lost several teeth due to neglect), and even those are torment. </p>
<p>I&#8217;m all in favor of being healthy, however the required actions are beyond my reach/range. Part of me feels like I survive based on the placebo effect, and were I to see a dr. for a physical, I&#8217;d collapse on the spot like an exorcised ghost, once I&#8217;d been told that my various systems were failing. My obsessive &amp; pessimistic mind makes it hard enough for me to function with the current problems of which I&#8217;m aware &amp; I don&#8217;t feel I can handle any more.</p>
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		<title>By: Saja</title>
		<link>http://www.journeyswithautism.com/2009/08/11/a-letter-to-my-doctor/comment-page-1/#comment-64371</link>
		<dc:creator>Saja</dc:creator>
		<pubDate>Wed, 12 Aug 2009 07:35:24 +0000</pubDate>
		<guid isPermaLink="false">http://www.aspergerjourneys.com/?p=3352#comment-64371</guid>
		<description>Rachel, most excellent. You are doing a wonderful job of standing up for yourself, and I&#039;m in awe. I hope I will get there someday soon.

I started feeling really sad for you about halfway through your letter, when you were describing how out of commission you&#039;d be from the tests. But your last paragraph tied the rest of the letter up neatly, wrapping it in a context of self-empowerment. Ashlynne is very lucky to have the mother she has, both as a role model and as support in her corner.</description>
		<content:encoded><![CDATA[<p>Rachel, most excellent. You are doing a wonderful job of standing up for yourself, and I&#8217;m in awe. I hope I will get there someday soon.</p>
<p>I started feeling really sad for you about halfway through your letter, when you were describing how out of commission you&#8217;d be from the tests. But your last paragraph tied the rest of the letter up neatly, wrapping it in a context of self-empowerment. Ashlynne is very lucky to have the mother she has, both as a role model and as support in her corner.</p>
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		<title>By: DonkeyBuster</title>
		<link>http://www.journeyswithautism.com/2009/08/11/a-letter-to-my-doctor/comment-page-1/#comment-64359</link>
		<dc:creator>DonkeyBuster</dc:creator>
		<pubDate>Tue, 11 Aug 2009 22:21:59 +0000</pubDate>
		<guid isPermaLink="false">http://www.aspergerjourneys.com/?p=3352#comment-64359</guid>
		<description>What a great letter! And once again... hooray for Bob!

Regarding the colonoscopy... unless you have risk factors in your family, I&#039;ve read there&#039;s no need for a yearly colonoscopy at our age. Also, there is an alternative, non-invasive test that has shown to be as effective, though I can&#039;t remember if it was ultrasound or MRI. Anyway, with that powerful search engine balanced on your shoulders, I&#039;m sure you&#039;ll find it out now that you know!  =0)</description>
		<content:encoded><![CDATA[<p>What a great letter! And once again&#8230; hooray for Bob!</p>
<p>Regarding the colonoscopy&#8230; unless you have risk factors in your family, I&#8217;ve read there&#8217;s no need for a yearly colonoscopy at our age. Also, there is an alternative, non-invasive test that has shown to be as effective, though I can&#8217;t remember if it was ultrasound or MRI. Anyway, with that powerful search engine balanced on your shoulders, I&#8217;m sure you&#8217;ll find it out now that you know!  =0)</p>
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