Comments on: Deafness and My Experience of Autism http://www.journeyswithautism.com/2009/08/12/deafness-and-my-experience-of-autism/ Ethics, Disability Rights, and Reports from Life on the Spectrum Tue, 07 Feb 2012 01:06:57 +0000 hourly 1 http://wordpress.org/?v=3.3.1 By: Tedra Knauss http://www.journeyswithautism.com/2009/08/12/deafness-and-my-experience-of-autism/comment-page-1/#comment-64763 Tedra Knauss Fri, 21 Aug 2009 17:29:40 +0000 http://www.aspergerjourneys.com/?p=3364#comment-64763 Hi Rachel! I just wanted to take a moment to thank you. My daughter Amelia,age 3 1/2, was recently diagnosed as being on the "high end' of the spectrum. A patient of mine happened to ask me to recycle an old copy of the Brattleboro Commons and I happened along your article about Autism Myths. You have succeeded in explaining my daughters challenges in one article where all the specialists in the area have failed. It would seem that you and she share the same challenges - she is super audio sensitive and many of the other misconceptions that you explain also seem to fit her. She is the most amazing child, very smart, funny and creative, and with your insight we have been able to adjust some of our lifestyle to help her accomodate to a "normal" childhood. Thank you from the bottom of my heart for sharing your experiences like you have. You have given my family a HUGE gift. Sincerely, Tedra Knauss. Hi Rachel! I just wanted to take a moment to thank you. My daughter Amelia,age 3 1/2, was recently diagnosed as being on the “high end’ of the spectrum. A patient of mine happened to ask me to recycle an old copy of the Brattleboro Commons and I happened along your article about Autism Myths. You have succeeded in explaining my daughters challenges in one article where all the specialists in the area have failed. It would seem that you and she share the same challenges – she is super audio sensitive and many of the other misconceptions that you explain also seem to fit her. She is the most amazing child, very smart, funny and creative, and with your insight we have been able to adjust some of our lifestyle to help her accomodate to a “normal” childhood. Thank you from the bottom of my heart for sharing your experiences like you have. You have given my family a HUGE gift. Sincerely, Tedra Knauss.

]]> By: DonkeyBuster http://www.journeyswithautism.com/2009/08/12/deafness-and-my-experience-of-autism/comment-page-1/#comment-64439 DonkeyBuster Fri, 14 Aug 2009 00:00:17 +0000 http://www.aspergerjourneys.com/?p=3364#comment-64439 And don't forget the handy dandy note pad... We use them in Zen retreats, when talking is forbidden, to convey essential info and questions. (I love Zen sesshin... NTs are usually so quiet then. LOL) Congrats on developing another succesful strategy! Every day's an adventure, and you're the Indiana Jones... =0) And don’t forget the handy dandy note pad…
We use them in Zen retreats, when talking is forbidden, to convey essential info and questions. (I love Zen sesshin… NTs are usually so quiet then. LOL)
Congrats on developing another succesful strategy! Every day’s an adventure, and you’re the Indiana Jones… =0)

]]> By: LizzieK8 http://www.journeyswithautism.com/2009/08/12/deafness-and-my-experience-of-autism/comment-page-1/#comment-64419 LizzieK8 Thu, 13 Aug 2009 14:08:04 +0000 http://www.aspergerjourneys.com/?p=3364#comment-64419 Great idea! You could also type the cards up for your friends and give them your e-mail if the have something important to share with you. I've been encouraging family and friends to resort to texting, e-mail and instant messaging for quite awhile now. Great idea! You could also type the cards up for your friends and give them your e-mail if the have something important to share with you. I’ve been encouraging family and friends to resort to texting, e-mail and instant messaging for quite awhile now.

]]> By: Ben http://www.journeyswithautism.com/2009/08/12/deafness-and-my-experience-of-autism/comment-page-1/#comment-64415 Ben Thu, 13 Aug 2009 12:47:20 +0000 http://www.aspergerjourneys.com/?p=3364#comment-64415 that's pretty cool. i'm also very sensitive to sound, and have been experimenting with using earplugs while i'm out, to cut down on the harsher noises. but does anybody else here find themselves in the (bad) habit i've developed, of being the one who is filling up the quiet spaces with their own chatter? one of my theories is that it's an attempt to exert control over my acoustic environment, and/or, an attempt to control a conversation which is usually very hard for me to follow, unless i concentrate like crazy. neither theory has been proven, yet. that’s pretty cool. i’m also very sensitive to sound, and have been experimenting with using earplugs while i’m out, to cut down on the harsher noises.
but does anybody else here find themselves in the (bad) habit i’ve developed, of being the one who is filling up the quiet spaces with their own chatter? one of my theories is that it’s an attempt to exert control over my acoustic environment, and/or, an attempt to control a conversation which is usually very hard for me to follow, unless i concentrate like crazy. neither theory has been proven, yet.

]]> By: Saja http://www.journeyswithautism.com/2009/08/12/deafness-and-my-experience-of-autism/comment-page-1/#comment-64413 Saja Thu, 13 Aug 2009 12:26:32 +0000 http://www.aspergerjourneys.com/?p=3364#comment-64413 Wow, Rachel, what an amazing strategy in the store! Wow, Rachel, what an amazing strategy in the store!

]]> By: Gavin Bollard http://www.journeyswithautism.com/2009/08/12/deafness-and-my-experience-of-autism/comment-page-1/#comment-64407 Gavin Bollard Thu, 13 Aug 2009 06:15:52 +0000 http://www.aspergerjourneys.com/?p=3364#comment-64407 Wow... I'm generally considered to be a pretty well adjusted and successful aspie. I wonder if the powers that be had a "reason" for making me deaf? It's probably the reason I've coped as well as I have. Congratulations on finding a brave new way to tackle the world. Wow… I’m generally considered to be a pretty well adjusted and successful aspie. I wonder if the powers that be had a “reason” for making me deaf? It’s probably the reason I’ve coped as well as I have.

Congratulations on finding a brave new way to tackle the world.

]]> By: Stat Mama http://www.journeyswithautism.com/2009/08/12/deafness-and-my-experience-of-autism/comment-page-1/#comment-64404 Stat Mama Thu, 13 Aug 2009 04:25:58 +0000 http://www.aspergerjourneys.com/?p=3364#comment-64404 These are some really interesting ideas! I'm glad you had such success at the store getting groceries. That's a difficult one for me (booming announcements, beeping registers, screaming children, clattering carts...omg). While your list may seem a bit overwhelming, just remember (with any list) you only have to do one thing at a time. I know that when I think of everything all at once, I get way stressed out. Tackling one thing at a time gives me more peace of mind. These are some really interesting ideas! I’m glad you had such success at the store getting groceries. That’s a difficult one for me (booming announcements, beeping registers, screaming children, clattering carts…omg). While your list may seem a bit overwhelming, just remember (with any list) you only have to do one thing at a time. I know that when I think of everything all at once, I get way stressed out. Tackling one thing at a time gives me more peace of mind.

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