Journeys with Autism Reports from Life on the Spectrum
  • Oct
    5

    My Autistic Life is Looking Up

    You’ve all been so supportive of me in my grief and frustration these past few months, and it’s meant a lot to me. Perhaps I needed to bottom out a few times and cry a lot of tears in order to open up the space for better things to come into my life. I’m not sure. In any case, all kinds of very promising things have been happening for me lately, and I want to share them. While I’m doing my level best not to get attached to outcomes, I can’t help but feel very positive and excited.

    Continuing Support from the Deaf Community
    Karen, my contact at the school for the Deaf, continues to be an absolute gem. In every interaction, she listens to me, she thinks about solutions, she gives me thoughtful answers, and best of all, she keeps my spirits up. What’s more, she does it all by email. We haven’t even met in person yet!

    As an example of what I admire about this woman, I’ll tell you how she responded when I described my auditory and visual difficulties with the ASL class. First, she said that she’d have no problem finding me an ASL tutor, but that she was concerned about the expense. She urged me to look for some kind of program that would help defray the cost, and she gave me a place to start. She also said that if I hit a snag, I should let her know, and she’d help me brainstorm further options.

    Next, she suggested that I get specific information about what kind of volunteer help is needed in the school library. With my sensory sensitivities, she said, volunteering in the library might not work. As it turns out, she was right to be concerned. The library tends to be noisy and full of activity. When I told her what I’d found out, and asked whether she could suggest some other options for volunteering, her response was so insightful and so helpful that I could hardly believe my eyes:

    “Oh yes I can think of volunteer opportunities for you! The challenge is finding you something where you control your own interactions with others, I think. The newsletter seems like it could be a good one because you’d be able to correspond mainly via email, control your level of input, and get to know people here at the same time. The drawback is that it’s not going to be a good bridge to you learning sign, because I can’t sign yet either. I’ll ask a couple other people for ideas too and get back to you.”

    In a follow-up email, she had even more ideas for things I might do, and I’m excited about the possibilities. I won’t write about specifics at the moment; when we get something definite in place, I’ll let you all know how it’s going.

    Meeting Up with Another Local Aspie
    I’ve been feeling kind of sad about my relationship with my first local Aspie friend. Our sensory sensitivities and social needs are so different that it’s been difficult to figure out a way to hang out. She’s a great person, and we’ve been continuing our friendship by email, but we’re both disappointed that we haven’t come up with a strategy for spending time together.

    Meanwhile, I met another Aspie woman in town who saw my article in the local paper and follows my blog. We got together this weekend, and somehow, we just clicked. The verbal pacing was right, our sensory sensitivities seem compatible, and we have some very specific interests in common. So yay! Another promising beginning.

    Plans to Meet Up with Yet Another Autistic Person 
    In one of the many newsletters that find their way into our house, I saw a classified ad about part-time respite care for a 50-year-old, nonverbal, autistic woman. I wasn’t looking for a job, so I didn’t pay much attention to the ad, except that the words “50-year-old, nonverbal, autistic woman” kept running across my mental screen for weeks. I thought, “You know, I’d like to meet this woman. Why not respond to the ad and say so?”  I wrote an email to the person who had placed the ad, explaining that I’m 51, that I’m autistic, that I navigate the world outside my home as though I’m deaf and nonverbal, and that I was hoping to make a connection with the person he’d mentioned in the ad.

    Getting any response seemed like a long shot, since I really wasn’t responding to the purpose of the ad. However, I probably should have bought lottery tickets last week, because taking a long shot paid off in a big way. I got a response, and it was a very enthusiastic one, too. Apparently, the woman herself does not use the computer, but she likes hanging out with friendly people, taking walks, going to the YMCA, and so forth. She is in a shared living situation, and the fellow in whose home she resides clearly likes and respects her. Because I’m not driving anymore, he is willing to drive her up to my house when we meet. So I am very glad to have made this connection.

    She and I will be spending a couple of hours together on Thursday. I am looking forward to it very much. I don’t feel any sort of anxiety about this new person, which is very unusual for me. When I meet people for the first time, I’m usually quite nervous. In this case, I suppose it’s the lack of social pressure that’s responsible for the happy sense of calm I feel. She and I aren’t going to talk with words, so I will have to find other ways to listen, to respond, and to communicate. Instead of making me nervous, the prospect sounds absolutely wonderful. It will be a challenge, but a good challenge, and something that I want to be able to do. My natural affinity is to people at the margins (no surprise there), and I’m learning to enjoy my own silence, so I’m feeling very optimistic about our time together.

    So many possibilities! Good things are happening.

    © 2009 by Rachel Cohen-Rottenberg

    7 Comments

7 Responses to “My Autistic Life is Looking Up”

  1. Great developments, Rachel! I’m excited for you.
    With regards the non-verbal autist… I’ve just found the non-verbal thread at WP and am learning tons about alternative communication and polite interactions… I recommend it as a resource for the two of you.

    http://www.wrongplanet.net/postt73273.html

  2. so happy to hear this :-)

  3. wonderful to hear that things are looking up. I was wondering if you had stopped with the ASL classes altogether. Hopefully you’ll be able to find tutoring you’ll be comfortable with.
    the whole non-verbal thing is interesting too. I’m afraid I talk a lot, probably too much. But the idea of not talking is beginning to fascinate me. I’ll have to check out that thread on WP. I’m open to learning more about it. I have been socially awkward all my life and tend to talk more when I am nervous. When people speak I might have a clue as to what is going on. When they don’t speak it’s uncomfortable and confusing for me. (But then again sometimes when they do speak I am uncomfortable, depending on what is said and how it is said….) Time to step out of my (un)comfortable zone and learn about a new way of being and interacting. I’m looking forward to hearing how it goes.

  4. Good news! Keep us posted!

  5. Very good Rachel! Very promising, all o that it seems! Wish I was closer! :) Have fun!

  6. Out of everything you said, the first paragraph had the most impact on me. I don’t have to be autistic to know frustration, grief and pain. And I do know these emotions, they are so essentially human. There is no shame in crying. There is no shame in letting yourself wrack with sobs so that you feel it in the bottom of your heart. There’s a reason we are designed with the ability to cry like that. We need it. Only society tells us to keep our chins up and keep plugging along. making our stress greater, and our depression worse. There is something to fake it till you make it, but there is something pure, and self-finding to just let the raw tears flow, and let your body move with it, let your voice join in.

    It’s not hitting bottom, it’s hitting your core, and from our core we are things.

  7. oops.

    Last paragraph,

    It’s not hitting bottom, it’s hitting your core, and from our core we are ALL things.

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About Me

I'm Rachel Cohen-Rottenberg, and I publish this blog, Journeys with Autism. I'm a wife, mother, writer, singer, artist, photographer, community volunteer, and the chapter leader for the Vermont Chapter of the Autistic Self Advocacy Network (ASAN).


At the age of 50, I awoke to my place on the autism spectrum and discovered a world of gifts, struggles, and life-changing possibilities. My latest book, The Uncharted Path: My Journey with Late-Diagnosed Autism, was published in July of 2010. My work has also appeared in Shift Journal of Alternatives: Neurodiversity and Social Change and in the Disability Rights and Neurodiversity section of the ASAN website.

My Memoir

"The Uncharted Path is an autism autobiography unlike any I’ve ever read.....I’d recommend The Uncharted Path to anyone on the spectrum, to anyone who has friends or relatives on the spectrum, and to anyone who cares for people on the spectrum. Her book is written straight from the heart.” —Gavin Bollard, author of Life with Asperger’s


“Cohen-Rottenberg is emotionally honest and skilled at relaying the stories from her childhood and adulthood that made her the person she is today....A highly recommended read."—Kate Goldfield, author of Common Scents: Adventures with Autism and Chemical Sensitivity


“What Rachel has written, few others would be able to....An enlightening journey."—Jon Gilbert, author of Same Child, Different Day


My memoir The Uncharted Path: My Journey with Late-Diagnosed Autism is now available in paperback for $17.95 and in PDF format for $8.95.


To purchase the book, please contact me by email. I accept payment via PayPal, by check, or by money order. You can also find the book for sale in paperback on Amazon.com.


Thank you for your interest in my work.


Rachel Cohen-Rottenberg
rachel@journeyswithautism.com

My Visual Art

Sojourning in the Visual World www.sojournerartist.com

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