Comments on: I Do Not Suffer from Autism http://www.journeyswithautism.com/2009/11/08/i-do-not-suffer-from-autism/ Ethics, Disability Rights, and Reports from Life on the Spectrum Fri, 03 Feb 2012 16:32:50 +0000 hourly 1 http://wordpress.org/?v=3.3.1 By: Rachel http://www.journeyswithautism.com/2009/11/08/i-do-not-suffer-from-autism/comment-page-1/#comment-154255 Rachel Tue, 10 May 2011 20:24:26 +0000 http://www.aspergerjourneys.com/?p=3871#comment-154255 Hi Darryn, So good to see you here! It's so important that people see that many of us struggled through hard times and have made good lives for ourselves. I want my blog to be a reminder that the future can be very bright, especially when kids have the right support. Hi Darryn,

So good to see you here! It’s so important that people see that many of us struggled through hard times and have made good lives for ourselves. I want my blog to be a reminder that the future can be very bright, especially when kids have the right support.

]]> By: Darryn Leslie http://www.journeyswithautism.com/2009/11/08/i-do-not-suffer-from-autism/comment-page-1/#comment-154244 Darryn Leslie Tue, 10 May 2011 19:54:56 +0000 http://www.aspergerjourneys.com/?p=3871#comment-154244 Thank you for this blog. I am new (like only 45 mintues of reading this site!) I am a children's occupational therapist and have a child with Asperger's. It is funny how easy it is to spot children struggling with issues when I have my professional hat on, but with my eldest, whom I only ever knew how he was with me and friends (and that was engaging completely how any 4 year old would be), it was very different. From around 3 years old, I occasionally would think that he showed some mannerisms that would concern me, but nothing enough to warrant further investigation and I would often pass it off as me being too professional and not a mum. It was only when he got into nursery and had to function in a busy, loud, social environment that concerns were raised - and when I saw how he was in that setting too. I was devastated to be honest as my bright boy who is so loving, affectionate and flexible, just looked competely lost and uncomfortable around 29 other children and he had just totally withdrawn into himself and the activity he had taken with him. Two years on, I feel I am a better therapist because of my home experiences, but I am also always trying to make sure that I can be a better mum too - reading this site has been a really good experience for me (and a bit of an emotional one as I read this poem!). It is also nice to be able to read about the life of someone with Asperger's who is leading a rewarding life and not just know about the children and young adults I see in therapy who are really struggling to cope with what life is throwing at them. Thank you for this blog. I am new (like only 45 mintues of reading this site!) I am a children’s occupational therapist and have a child with Asperger’s. It is funny how easy it is to spot children struggling with issues when I have my professional hat on, but with my eldest, whom I only ever knew how he was with me and friends (and that was engaging completely how any 4 year old would be), it was very different. From around 3 years old, I occasionally would think that he showed some mannerisms that would concern me, but nothing enough to warrant further investigation and I would often pass it off as me being too professional and not a mum. It was only when he got into nursery and had to function in a busy, loud, social environment that concerns were raised – and when I saw how he was in that setting too. I was devastated to be honest as my bright boy who is so loving, affectionate and flexible, just looked competely lost and uncomfortable around 29 other children and he had just totally withdrawn into himself and the activity he had taken with him. Two years on, I feel I am a better therapist because of my home experiences, but I am also always trying to make sure that I can be a better mum too – reading this site has been a really good experience for me (and a bit of an emotional one as I read this poem!). It is also nice to be able to read about the life of someone with Asperger’s who is leading a rewarding life and not just know about the children and young adults I see in therapy who are really struggling to cope with what life is throwing at them.

]]> By: Rachel Cohen-Rottenberg http://www.journeyswithautism.com/2009/11/08/i-do-not-suffer-from-autism/comment-page-1/#comment-130023 Rachel Cohen-Rottenberg Mon, 21 Feb 2011 19:47:27 +0000 http://www.aspergerjourneys.com/?p=3871#comment-130023 Thank you for your kind words, Flannery. Thank you for your kind words, Flannery.

]]> By: Rebecca http://www.journeyswithautism.com/2009/11/08/i-do-not-suffer-from-autism/comment-page-1/#comment-130022 Rebecca Mon, 21 Feb 2011 19:47:12 +0000 http://www.aspergerjourneys.com/?p=3871#comment-130022 This can be spoken of any 'disorder' that anyone can be diagnosed with. This can be spoken of any ‘disorder’ that anyone can be diagnosed with.

]]> By: Rachel Cohen-Rottenberg http://www.journeyswithautism.com/2009/11/08/i-do-not-suffer-from-autism/comment-page-1/#comment-130021 Rachel Cohen-Rottenberg Mon, 21 Feb 2011 19:47:02 +0000 http://www.aspergerjourneys.com/?p=3871#comment-130021 Thank you, Jessica. So good to see you here! Thank you, Jessica. So good to see you here!

]]> By: Jessica http://www.journeyswithautism.com/2009/11/08/i-do-not-suffer-from-autism/comment-page-1/#comment-130016 Jessica Mon, 21 Feb 2011 19:19:34 +0000 http://www.aspergerjourneys.com/?p=3871#comment-130016 Beautiful, beautiful piece. Beautiful, beautiful piece.

]]> By: Flannery http://www.journeyswithautism.com/2009/11/08/i-do-not-suffer-from-autism/comment-page-1/#comment-130014 Flannery Mon, 21 Feb 2011 19:17:35 +0000 http://www.aspergerjourneys.com/?p=3871#comment-130014 That is really awesome. I will have to save it for my son to read when he is a bit older. Thanks so much for sharing it. That is really awesome. I will have to save it for my son to read when he is a bit older. Thanks so much for sharing it.

]]> By: Rachel Cohen-Rottenberg http://www.journeyswithautism.com/2009/11/08/i-do-not-suffer-from-autism/comment-page-1/#comment-130010 Rachel Cohen-Rottenberg Mon, 21 Feb 2011 18:48:10 +0000 http://www.aspergerjourneys.com/?p=3871#comment-130010 Thank you, K. I love your writing, too. It's very kind, spiritual, and uplifting. Thank you, K. I love your writing, too. It’s very kind, spiritual, and uplifting.

]]> By: Rachel Cohen-Rottenberg http://www.journeyswithautism.com/2009/11/08/i-do-not-suffer-from-autism/comment-page-1/#comment-130007 Rachel Cohen-Rottenberg Mon, 21 Feb 2011 18:47:03 +0000 http://www.aspergerjourneys.com/?p=3871#comment-130007 I only speak for myself and for others who feel as I do. Human experience is too varied for people to say that they speak for everyone. I only speak for myself and for others who feel as I do. Human experience is too varied for people to say that they speak for everyone.

]]> By: Claire http://www.journeyswithautism.com/2009/11/08/i-do-not-suffer-from-autism/comment-page-1/#comment-129981 Claire Mon, 21 Feb 2011 17:16:34 +0000 http://www.aspergerjourneys.com/?p=3871#comment-129981 It's beautifully written and very true for you, no doubt. Hopefully, though, people won't misinterpret this as meaning that NO ONE suffers from autism. I am all too familiar with young people who do. It’s beautifully written and very true for you, no doubt. Hopefully, though, people won’t misinterpret this as meaning that NO ONE suffers from autism. I am all too familiar with young people who do.

]]>