Archive for Friendship

Aspies and Friendship: Part Three

Now that I’ve discussed my difficulties with friendships, I’ll spend some time talking about my successes.

During my five-year stint of social disasters, I made two very good friends. Their presence in my life is proof of the maxim that as far as friends are concerned, quality is what counts, not quantity. Not surprisingly, both friendships developed in the contexts in which I’m most comfortable: being a mother, and working on a creative project.

One of these friends is a woman named Sue. When we first met, I was new in the area and looking for other homeschoolers for my daughter to meet. Someone in town had given my husband Sue’s phone number and told him that she’d love to hear from us. I have a lot of anxiety about talking on the phone to new people, so I put off calling Sue for days. I need not have worried. When I finally called her, we hit it off immediately and had a great conversation. Our daughters became good friends, and so did we. We talked about things that mattered: our kids, our childhoods, our views of the world. Sometimes, months would pass between conversations, but we’d always pick up right where we’d left off, as though no time had passed at all. Her friendship was a bright light in a very difficult time.

The other friend I made during this time was a man named Francis. He was 88 when I met him, a shy and generous man who disliked crowds and felt most comfortable in the outdoors. He was a retired farmer with an amazing number of great stories and an even more impressive number of old photographs. In the course of our visits, I began recording his stories. At home, I transcribed the stories, scanned many of his photographs, and ultimately wrote a book about his life called A Sense of Place: The Story of the Williams Family Farm. The book was published in September of 2007. Unfortunately, Francis did not live to see the final version, but he did see a first draft and never stopped marveling over the fact that someone would want to write a book about him. He died on February 3, 2007 at the age of 91.

The following is a eulogy that I gave at Francis’ funeral in early February, 2007. Apart from the book, it’s the best statement I have of how precious our friendship was to me.

For Francis Russell Williams, July 17, 1915–February 3, 2007

As many of you know, I’ve written a book about Francis and his stories of grow­ing up and raising his family on the farm in Apple Valley. The book will be pub­lished in September, but I’d like to read a modified excerpt from it today in order share some memories of Francis and what he meant to me.

I first met Francis when I became a Meals on Wheels driver in 2003. He had come into the program shortly after Margaret died. His grief and exhaustion were so great that he had stopped eating and was slowly withdrawing into him­self. His family hoped that having someone deliver food each day would bring Francis back into life. So, in the early months of 2003, I began arriving at Francis’ home each Thursday and Friday, placing his meal on the counter, giving him a friendly greeting, and getting on my way.

At least, I wanted to be getting on my way. But Francis always wanted to tell me a story.

In fact, he always wanted to tell me the same story.

During those first months, Francis told me the story of the day that Margaret had died. She had wanted to die at home, but he had taken her to the hospital, unaware that she was in her last hours, and she had died there. He was so afflicted by his inability to grant her last wish that he told me the story over and over, as though by repeating it, he could somehow find his way out of the pain.

In those early days, I found it very difficult to stand there in the face of Francis’ pain, when I could do nothing at all to take it away. Standing there and doing nothing were nearly impossible for me in any situation. I was always rushing here and there, doing several things at once, and rarely stopping to look around me. But, thankfully, Francis opened the door to a much healthier way of being in the world.

It happened on a Friday afternoon in the early spring. That day, I once again made my way to Francis’ door. Gathering up his lunch, I walked up the steps to the porch, opened the door, and said hello.

Something had changed. Francis was standing at the kitchen window, looking intently outside. As I put his lunch on the counter, he said, “Look at what I’m see­ing here.” I looked out the window and saw nothing out of the ordinary at all. Francis was the final person on my route, and I was tired, and I was hungry. My mind was racing with all the things I needed to do, and I was in a big rush to do them.

But for some reason, I didn’t leave. I simply asked, “What is it?”

Very slowly, without taking his eyes away from the window, Francis said, “There’s a little bird building a nest in that birdhouse.”

“What birdhouse?”

“The one right across from us.”

“Where?”

“Across the driveway.”

I finally saw it. It was a tiny little wooden birdhouse with a tiny little hole in the front. From where we were standing, it was impossible to see inside it. How could Francis possibly know that a bird was building a nest in there? I couldn’t understand it.

But Francis just kept standing there, looking at the little birdhouse, with a look on his face I had never seen before. His eyes were bright and full of expectation. So I kept standing there, too, looking at the birdhouse.

But I couldn’t keep quiet. “How do you know there’s a bird building a nest there?” I asked.

“There’s a little bird that comes to the birdhouse with one little twig. It goes into the birdhouse for a few seconds, and then flies away to get another twig.”

“Really?”

“I’ve been watching him do that for the past 15 minutes. He’s not there now, but he’ll be back.”

“Really?”

“Just wait.”

“Really?”

He stopped answering, and I finally stopped talking. I may even have stopped thinking. In any case, I was definitely standing there doing nothing—unless you count waiting breathlessly for the appearance of a little bird with a little twig.

And then, there he was, holding a thin twig that was longer than he was, and somehow getting both the twig and himself inside that little birdhouse. He stayed for only a few seconds, long enough to lay down the twig before flying off for another one.

Of course, I just had to stay to watch the bird do it all over again. It took a little while, maybe 30 seconds, for the little bird to return with the little twig and disap­pear inside the little birdhouse again. And when I saw him fly off in search of another twig, I could hardly contain my excitement.

We stood together at the window, waiting patiently for the bird to come back a few more times before I took my leave of Francis that day. We had looked out of the window together for only five minutes, but those five minutes were a time of pure delight. There I was, standing there and doing nothing, and that was enough.

At the end of 2003, I left the Meals on Wheels route and began seeing Francis for an afternoon each week. Sometimes, we just sat quietly and watched the crows fly among the trees in his yard. He was extremely attentive to the natural world outside his window, and he would often point out the subtle changes taking place in the woods behind his house. Little by little, I learned to be attentive–to stop, to watch, and to listen. Slowly but surely, I began to see and to enjoy the world in a way that had always eluded me. Francis didn’t teach me anything by intention. He was just being himself, and he brought me along with him.

And, as I was to find, there were other gifts. Francis told wonderful stories–of his life on the farm, of his schooldays, of his parents and grandparents and children, of the Apple Valley community he loved and remembered so well. He hadn’t lived on the farm since 1963, and yet he remembered all the roads from his childhood–how to get to the Hawley pasture with the dry cows in the summer, how to get to Depot Road to bring the milk to the train with his father. His stories were sometimes sad, at times hilarious, and always interesting.

Even as Francis struggled against the infirmities of mind and body, he was never harsh or impatient with me. He never asked for more than I had the energy to give. He was always kind, always gentle, and he always appreciated whatever I did, no matter how small. His home became a place in which I felt completely welcomed, completely accepted, and completely at ease. Among all the rea­sons that I will miss visiting my friend Francis, I will miss the simple ease of being with him most of all.

Francis was a wonderful man. I feel very blessed that he was my friend.

© 2009 by Rachel Cohen-Rottenberg

Aspies and Friendship, Part Two

In January of 2003, two wonderful things happened: I married the love of my life, and I left my 15-year career as a technical writer to become a full-time homeschooling mom.

However, beginning in 2003 and ending in early 2008, I also went through a period in which I was almost totally unable to form friendships. With only two exceptions, this area of my life was a complete disaster.

How did such wonderful experiences coincide with such painful ones? Four major events converged: 

1. I moved an hour away from my old neighborhood to the rural county in which my husband had lived for 25 years.

2. I no longer had the daily structure of a full-time job.

3. The daily routine of homeschooling, with all of its required preparation and documentation, came to an end in 2005, when my daughter started going to school.

4. My husband had been the spiritual leader at the synagogue I was attending, and all hell had broken loose when we told people that we were in love. He had been given the decision of choosing between his job and me. Of course, he had chosen wisely. But guess who got blamed for his departure, even after we were married? (Hint: It wasn’t him.)

Finding myself starting over in a new community, I was faced with making a whole new set of friends. Unfortunately, the major changes in my life were exposing all of my deficits in this area.

Difficulties with lack of structure
As I mentioned in my last post, it has always been easier for me to make friends in the context of work. At the beginning of 2003, I found myself in a work-free zone. Homeschooling my daughter took up the slack for a little while, because it provided me with a daily routine and a way to engage the outside world. We had our goals for each day, and I’d bring my daughter to various activities, where I had contact with other adults.

Once my daughter went to school, though, I lost another piece of badly needed structure. The friends were still there, but without the structure, it felt overwhelming to try to make plans with them.

Difficulties with social outings
To be honest, I couldn’t really understand what to do with a friend outside of work or a child-centered activity. We could go to the movies, I suppose, and have dinner, but why? I could watch a movie and eat dinner myself.

After interviewing my husband on this issue, I now understand that neuro-typical people enjoy going out with a friend just because it’s fun to spend time together. He says that he enjoys the back-and-forth nature of a conversation and the good feelings that flow between people who enjoy each other’s company.

That sounds very nice, doesn’t it?

The problem is that, unless I am outdoors walking or hiking, none of that works for me. Part of it is simply the difficulty of keeping a conversation going while sitting down in an enclosed space. I can’t keep up with the spoken words and I have trouble coming up with a response. As I get further and further behind, I fidget, stammer awkwardly, or go into hyperdrive and start talking endlessly.

Put my processing delays into the context of background noise and other sensory stimuli, and the evening quickly becomes very hard work. I get very worn out, and the person sitting in the path of my passionate monologues gets pretty exhausted, too. Whatever my nonverbal cues are, they’re not matching the words tumbling out of my mouth, so most people end up feeling very confused.

By the time it’s all over, I never want to say another thing to another human being ever, ever again.

Inability to let go gracefully
I had tried (and failed) to be part of a religious institution. It had happened before, and it was happening again. Not only was I leaving, but I was leaving under a cloud of hostility and blame.

When it came down to it, I knew that I was right and that they were wrong. And, having a strong sense of justice, I never let myself get run out of a place without some sort of eloquent response. In this case, I had a very public meltdown in front of the entire board of directors.

My husband still refers to it as “the night I spontaneously combusted.” It wasn’t the best way to make friends and influence people.

Making friends for negative reasons
During this period, I formed a friendship with another mom that I thought would last. It didn’t. We had a lot of things in common, but as I look back on it, much of our friendship consisted of being very pissed off at the same things. Needless to say, we burned each other out within a year.

Hey, at least it was reciprocal, right?

Feeling invisible
Has this ever happened to you?

My husband and I would go out food shopping, for example, and we’d run into people who would talk to my husband while completely ignoring me. It happened regularly, and we never knew what to say or what to do. We used to just stand there, thinking that surely, the person would realize how rude he or she was being, and stop. We were wrong.

Once I had had enough experiences like this, I became more and more vulnerable to the slightest things. I was very wounded from what had happened in the synagogue, and I figured that being ignored was an extension of that situation. There was clearly some shunning going on, because some people were openly hostile.

But I’ve since learned that being ignored is not unusual for people on the spectrum. So, I’m willing to admit that perhaps I wasn’t always being ignored just because people were misdirecting their anger at me. Perhaps some people couldn’t see me or deal with me because I didn’t put out the social signals they were used to.

I began to get some insight into this phenomenon when I read the following passage from Women from Another Planet? edited by Jean Kearns Miller:

“One of the unspoken rules seems to me to be, that whatever signals one puts out at first contact are vital to what happens subsequently. If I arrive too overloaded to make some initial contact (eye contact and/or immediate comments), there tends to be no contact throughout the event, no matter how hard I try. I feel like either a social judgment has been made in those first moments, or a social dead-zone perceived, which is unchangeable regardless of what I try subsequently.” (Miller, 40)

I very much identify with the experience described here, and the analysis of why it happens feels right to me.

Difficulty living in the land between acquaintances and close friends
For neuro-typical folks, form in a social interaction is more important than content. I don’t know entirely what that means, because content is sacred to me, but I gather that others engage in various kinds of social niceties that seem to involve questions about the other person’s health and current activities, such as “How are you?” and “What’s up?” These questions, however, do not require a literal response. They are simply a way of saying, “I acknowledge your presence and I come in peace.”

Because of my strong preference for content, I never went through a period of small talk or social niceties with my long-term friends. We just started talking about things that mattered to us, and we felt very comfortable being open with one another. As a result, all of my friends are close friends. Unfortunately, none of them live nearby anymore, but we keep in touch by email and see each other when there is an opportunity. In fact, two of them were the first people to whom I disclosed my AS diagnosis, and they were completely supportive.

I don’t really know how to have friends any other way. So, I generally wait to bump into another person who lacks the small-talk gene, and then I hope for the best.

Luckily, I managed to find two such people during my “time of troubles.” In my next post, I’ll talk about them and how much they’ve meant to my life.

© 2009 by Rachel Cohen-Rottenberg

Aspies and Friendship, Part One

Many Aspies have difficulties navigating the world of friendship, and I am no exception. I have good friends of many years duration, but I find it hard to traverse the territory between acquaintance and close friend.

As I wrote in my last post, high school was the beginning of my social difficulties. I couldn’t understand the rules of social interaction. I always felt mystified by that strange, invisible force field that seemed to separate me from other people. I pretended to be “normal,” but I had a sinking feeling that I wasn’t fooling anyone. I was very uncomfortable in my own skin, felt constantly overloaded, and couldn’t imagine why anyone would put up with me.

Nonetheless, I had several friends in high school, all of whom were outsiders of one kind or another. My friends seemed to like me, but to be honest, I still don’t know why. Because I was involved in music, I had a kind of crowd, but I always felt socially outclassed and very much younger than everyone else. It was as though everyone were growing up around me, and I was a perpetual kid.

Not surprisingly, I got verbally bullied fairly regularly.

When I was a freshman, one boy wrote in my autograph book: “To a girl who nobody likes and a teacher’s best friend.” I was so naive that I kept looking at what he wrote, trying to figure out the joke. I couldn’t imagine that anyone would be so mean as to write such a thing in an autograph book and be serious about it.

I took to sitting alone, just to have a break from other people. It felt like a great relief—that is, until another student came up to me and said, “Hello, friendless.” That was enough for me. I decided to sit with other people on a regular basis no matter how exhausting it was.

By my senior year, I began to realize that people thought I was rather strange. Several people signed my yearbook with a variation of “It’s been real (?)” and a couple of people made crude sexual jokes. I couldn’t figure any of it out. Did people think I wasn’t real? Was there a question in their minds? And were they actually having sex in high school while I was studying for my SATs?

I was so behind the curve.

Was I strange?  I don’t think I was, really. I was different, that’s for sure. I was also exhausted from the physical and mental exertion of trying to keep up with lots of conversations, of walking in the midst of a crowded high school, and of defending against the noise and the chaos in the hallways. I was nearly overwhelmed with anxiety over my need to mimic other people, and I felt panicked by my inability to understand why I hadn’t felt like a person since grammar school.

I couldn’t even figure out why people laughed until a friend explained it to me. She said, “It’s easy. If you think it’s funny, laugh. If you don’t, don’t.”

I was really struggling.

College and graduate school weren’t all that much of an improvement. I felt equally lost in an even bigger world. I excelled academically, and that gave me a certain amount of self-esteem, but it was wearing very, very thin.

I turned a corner of sorts when I began a career as a technical writer. I lost some of my insecurity and became much more sociable. I began to regain that sense of self that had been missing since childhood. I have been puzzling over those days and why I did so well. I’ve finally discovered the answer.

The software industry was the first daily environment since grammar school that made sense to me. The rules were clear. The projects were well defined. I did a good job and got rewarded for it. Best of all, writing departments were populated by people with literature and language degrees, like myself. I made several friends with whom I am still in contact almost 20 years later.

I didn’t spend a lot of time with friends outside of work, though. The structure of the workplace was very important. Put me in an unstructured situation, without a clear goal, and I was dazed and confused. Working in an office, in a structured situation, I got to have lots of interesting conversations and still get my work done. Each day during my lunch hour, I’d take a walk with a friend and we’d talk about religion, or politics, or what was going on in our lives. It was close to perfect.

When my daughter was born, I discovered another avenue into the world of adult friendships. Showing up anywhere with an infant was an instant conversation starter. People would ask her name, and tell me how sweet she was, and show me pictures of their own children. When we moved into a neighborhood with a lot of kids, I had a ready-made social group of other parents.

But as my daughter grew, I began to notice something troubling about my neighborhood friendships. With a couple of notable exceptions, my relationships tended to consist of people telling me about the problems in their lives but rarely asking about my own. In fact, it didn’t seem to occur to them that I might have problems, too.

I didn’t understand the reason for this lack of social reciprocity. At the time, I thought that I wasn’t responding to people properly and giving them the support they needed. I was convinced that I was saying the wrong things, and so they didn’t want to know anything about my experience.

I now realize that people were responding to my Aspie innocence. People knew that I was trustworthy, and they would tell me things that they didn’t talk about with anyone else. I heard about alcoholic husbands, abusive partners, and the details of serious health problems. When I went for walks in the neighborhood, elderly ladies would even run out in the snow in their slippers to talk to me.

It was all very flattering, and even reassuring, to some degree. But it was also very empty. When my first marriage broke up and I told some of the neighbors, they literally took several steps back and didn’t want to hear about it. I realize that I shouldn’t have been shocked by this turn of events, but I was.

I’ve learned a lot about myself since then. In another post, I’ll write about more recent experiences and how I currently navigate the world of other people.

© 2009 by Rachel Cohen-Rottenberg

Questions on Growing Up Aspie

Last week, Erin asked some great questions about raising an Aspie daughter. My situation is a bit different, in that I’m an Aspie mother raising a neuro-typical daughter, but my experience might be of some help.

Erin began by saying:

“I’m trying hard to understand how my daughter thinks. I don’t ever want her to get the idea that she’s broken, or needs to be fixed, or needs to conform or submit to someone’s ideal of normal, etc. I want her to believe in herself while learning to navigate the NT world, if that makes sense. But the social stuff is hard for her (already, she’s 5 and it’s only going to get worse).”

Here are Erin’s questions, along with my answers:

1. How did you navigate friendships when you were young?

When I was in grammar school, I didn’t have too many problems with friendships. One reason was that I tended to favor boys over girls. I felt that I had more in common with boys. They were more likely to be athletes like me, and they were more straightforward than girls. Plus, they didn’t spend recess talking about their hair or their clothes, two subjects that did not interest me in the least. In fact, they didn’t spend time at recess talking at all, so I was relieved of the obligation of standing around and trying to figure out how a conversation works. Instead, we played whatever sport someone had in mind at the moment. It didn’t matter what we played, so long as we were running around and screaming our heads off.

I also made an effort to befriend girls who were outsiders. My parents told me that I should seek out the girls who were excluded. My mother and father were not religious people, but they had pride in being Jewish and felt that this was the Jewish way. They said that because we Jews have faced isolation and exclusion, it’s incumbent upon us to reach out to people in similar situations. So I did, and gained both good friends and a sense of moral power.

Another aspect of grammar school that made life easier was that I went to a small, conservative, well-run public school. There were lots of rules there, and the rules were enforced very fairly and consistently. The principal did not allow any kind of physical fighting to go on in his school. If two boys were caught fighting on the playground, he would call an all-school assembly (grades K-8) and read us the riot act. Everyone feared him, but he made school a very, very safe place. I did not feel uncomfortable there, because the prime directive was that kids be safe with one another, and that helped me to feel good about myself.

But then, there was high school. High school changed everything. I had a very, very difficult time. I went from a small grammar school to a very large, chaotic high school. The social relationships became more complex, and I couldn’t navigate them very well at all.  I gave up sports (young ladies did not play baseball in those days), and I felt like a ghost most of the time. I spent a lot of time faking it, pretending that I knew what was going on when I had no clue. Each year, I would choose a girl I wanted to emulate and spend the whole year trying to act like her and be like her.

Apparently, this is quite common for Aspie girls. It took me many years of work in adulthood to assert my personality and to take up my share of the space on this planet.

2. How about family relationships?

My family was quite dysfunctional and very overwhelming to the senses. I gravitated to the calmest people in the family–my maternal grandparents and one of my uncles. They were always very kind and very loving. I can feel myself relaxing just thinking about them.

3. With all the ways you were different from other people, how did you find empowerment and confidence?

Being an athlete helped tremendously when I was a kid. I felt very powerful being able to pitch, to hit a baseball out of the infield, and to run and slide and do all the things that girls weren’t supposed to be able to do.

When I was in high school, I traded in athletics for music. I participated in every musical activity the school had to offer—marching band, orchestra, jazz band, concert choir, and the vocal ensemble. I was the piano accompanist for the ensemble and for a Gilbert and Sullivan musical. I learned how to play the alto sax so that I could be in the jazz band, and I loved to sing and to play the guitar.

It’s a tragedy that so many schools have cut their music and arts programs. Without an excellent music program in high school, I might easily have used drugs to deal with my feelings of isolation. I was very, very fortunate to live in the time and place I did.

But the most important thing I’ve ever done for a sense of personal empowerment was to train in a martial art. When my daughter was seven, I got her involved in a dojo for women and girls, and I joined the dojo when she was about 11. My daughter left at 14 with her purple belt, and I left with my blue belt. (I’d still love to train, but the dojo is too far from where we live now.) Using the empowerment, focus, and agility she learned in karate, my daughter is now a goalie for her school’s soccer team. (And this was a child who actively ran away from the ball her first year.)

I love the dojo because its philosophy is to teach girls and women how to trust their bodies, use their voices, walk with confidence, and defend themselves. There were a number of developmentally disabled girls and women there, and they did just fine. There is no girl or woman who cannot learn a martial art. I have seen it with my own eyes. I have watched girls grow in confidence in beautiful and powerful ways.

At the dojo, they do a lot of work on verbal self-defense, since that is what girls most need on a daily basis. They do a lot of role playing in which a girl is told she is too fat, or too thin, or stupid, or weird, and then everyone has to come up with a way to shield and to respond. It’s a very supportive environment and very affirming of differences.

4. Is that too many questions?

No, not at all. Any and all questions are welcome.

© 2009 by Rachel Cohen-Rottenberg